quality of life

  1. T

    My story

    I hope it may defer some to look further, to dig deeper or to stop life when there is no reason. I come from a family with a genetic disease that has meant death for all women on my maternal side before the age of 55. I never thought closely about that, until I was somewhat older (36) and had...
    • Teedot
    • Thread
    • ability age als back dad death diagnose early emg eye family father genetic hope increase muscle muscle twitching neurologist quality of life story swallowing symptoms test thumb twitches twitching
    • Replies: 1
    • Forum: Could this be ALS?
  2. T

    Embarassed to ask but need to know!

    My PALS was diagnosed Sept 2011. Prob had it a year earlier. Started in his hands and was slow moving until about 2 years ago and it went crazy. He is paralyzed except for his neck and a little shoulder which still allows him to drive his power chair. He has always had a really good outlook...
    • Texans 2014
    • Thread
    • back breathing chair children cough assist diagnosed dying eye eye gaze eyes feeding feeding tube hours life love paralyzed peg power power chair quality of life shoulder sleep treatments vent
    • Replies: 15
    • Forum: Current caregivers
  3. S

    Phlegm issues

    Hi friends! My mom was diagnosed in Feb/17 and seems to have bulbar onset although the doctors haven't said. Her first symptom was hand weakness and now she has slurred speech, decreased FVC and just recently issues with swallowing. We live in Canada and are getting the generic version of...
    • Sroccia
    • Thread
    • advice bulbar bulbar onset canada choking cough assist diagnosed drugs fvc helpful hope issues life nuedexta onset phlegm possible a problem progression quality of life slow progression slurred speech speech swallowing symptom weakness
    • Replies: 9
    • Forum: General discussion about ALS/MND
  4. M

    Thank you

    I've only ever written here in a state of panic. This time it's different. This forum, and the pinned post 'Do I have ALS?', have made me realize the anxiety that I have over inheriting FALS. I found the post last time i was wrapped up in fear, and it made me realize that anxiety was the...
    • Momofone
    • Thread
    • als als? anxiety do i have als do i have als? fals family fear life quality of life reading symptoms
    • Replies: 4
    • Forum: Could this be ALS?
  5. M

    Concerned, lots of symptoms.

    Hi everyone, I'm new to these forums and I just wanted to find a place I could talk to some people and maybe get some clarification and talk to someone with similar issues. I actually don't think it is ALS specifically, but I have not really been able to find anywhere/anyone to talk to about...
    • M1k3
    • Thread
    • 2nd emg abdomen als balance concerned cramping emg fasciculations fatigue helpful life lift muscle neurologist quality of life running sleep story symptoms wanted worried
    • Replies: 2
    • Forum: Could this be ALS?
  6. B

    Respitory Failure

    Hello, I hope you can help me, and I apologize for asking such a difficult question, but I feel very overwhelmed right now. My mother was diagnosed in July with extremely progressive ALS. When she was diagnosed her lung capacity was at 30% and has diminished considerably since then (while...
    • BU99
    • Thread
    • als bipap caregivers caregiving coughing diagnosed diagnosis hope hospice life lung capacity morphine night quality of life saliva test ventilator worried
    • Replies: 4
    • Forum: General discussion about ALS/MND
  7. L

    Could this be ALS or MND?

    Hey guys, This is my first post here but I really needed somewhere to talk about my current situtation. As a disclaimer, I have had health anxiety in the past. My symptoms probably became noticable about a year ago. I was a weightlifter in college about a year ago and one day after a...
    • Legaljunky1
    • Thread
    • als ankle anxiety back ball clonus could this be als cramps depression fasciculations health help! ideas life mnd muscle night pain physical therapy quality of life second opinion symptoms tests therapy vitamin d weakness worried young
    • Replies: 5
    • Forum: Could this be ALS?
  8. D

    Suffocation & choking

    It troubles me to read about PALS who fear suffocation and choking when those fears are not warranted. When doctors say “respiratory failure,” they need to do a better job explaining that this does not mean "suffocating" or “choking.” Virtually all researchers have found that the vast majority...
  9. W

    New to caring for MND/possible ALS

    Hi all - I am new to this forum and new to this role as a care giver to a patient with motor neuron disease. I have been looking for a place to be able to share what I am going through with people who can understand. My husband and I met in 2009 and married in June 2014. In May 2016, we saw his...
    • wifeofgrumpybear
    • Thread
    • age als clinic friend frustrated goodbye heart life love mnd mobility motor neuron disease neurologist possible als quality of life questions reading tests weakness work
    • Replies: 13
    • Forum: Current caregivers
  10. H

    Can ALS / FTD account for all these changes?

    My sister just left after a long visit, and I find myself just astonished at the changes in her over the last six months. She is much weaker and must use assistive aids to walk in the house or have someone support her if she walks outside, and after a mile or so of walking, foot drop kicks in...
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