quality of life

It's been 7 weeks since my mom passed away . My parents apartment has been emptied and keys have been returned. People and agencies have been notified, and death certificates picked up. Time slowly starts to go back to the pre symptom, pre Dr visits, pre ALS days. And I miss her. I know she's...

My father-in-law died of FTD/ALS shortly after my diagnosis of ALS. We knew he had FTD, but had no idea about the ALS until I started researching the disease. When I found this sub forum, I strongly suspected what had happened. My father-in-law, Yan, was an incredible man. He was a GP and...

My dad is declining very fast. As new changes happening I would like to ask you for an advice/comments on the following points: Fatigue: My dad is very weak. He almost can't walk or stand up from a chair anymore. Taking him to the Dr or clinic is such a draining task on him. Just getting an...

My husband gets seen by the VA but they sent us to UT Southwestern to the pulmonologist to get a sleep study and orders for a cough assist and Trilogy. They are also the ones who are going to do the PEG tube. We had our first appointment there a couple of days ago. Towards the end of our...

Third most read article on the nation's #1 news site yesterday: "nothing to complain about my quality of life".

My dad keeps saying he doesnt want to wake up. He hates that he cant do anytjing but is refusing almost all interventions (peg, walker, scooter, wheelchair, etc... he does have a bipap and cough assist but only uses it about 5 hours at night instead of most of the day as per dr). We keep trying...

Hi. I'm a 31 year old male who began experiencing symptoms in late February. Would like to know if there is real concern for ALS and not just fearing the worst. My symptoms started with my arm suddenly jumping off my computer mouse at work one day. Thought it was odd at the time but moved on...

I have had als for 6 years and vented for almost 3 years. I made this for several reasons : physically (i a basically paralyzed from head to toe), quality of life, financial, insufficient nursing, burden on my family, ready to meet my maker and make me whole again. I am at peace with the...

When can we, or should we, restrict online speech? Should cyberbullying be a crime, like it is to shout “fire” in a crowded theater or to yell “jump!” at someone poised on a ledge? What if the online message is written with compassion, but has the predictable effect of tipping someone over the...

I hope it may defer some to look further, to dig deeper or to stop life when there is no reason. I come from a family with a genetic disease that has meant death for all women on my maternal side before the age of 55. I never thought closely about that, until I was somewhat older (36) and had...