quality of life

  1. Snowbird

    Diagnosis, public awareness & acceptance

    I have read some of the posts re. diagnosis of ALS/MND. Jack had undergone all kids of tests for 2 1/2 yrs before he got his final diagnosis of ALS. The neurologists were reluctant to call it ALS because he had no bulbar involvement, right to the end. However, it was the ALS Clinic at...
  2. H

    Decision making--life support or not

    My brother was diagnosed with ALS a few months ago. He can still talk, breathe and swallow fine, but otherwise is totally disabled (can't stand up, uses a wheelchair, etc.). He is thinking about whether he would want to use a respirator & feeding tube when he needs them, or not. He is mainly...
  3. D

    New guy, new HOPE

    My name is Derek I am 29 years young. I am married to my beloved wife and stronghold Jessica. We have three children, a 7 year old daughter Mackenzie and two sons Samuel who is 6 and Jacob, 10 months. I was diagnosed with ALS in October of 2003. The use of equipment from the ALS Society of...
  4. M

    Living will

    This topic is running in uk build http://www.magimedia.co.uk/buildforum/ we gave my wife power of attorney when i was diagnosed, she used it a couple of years later. my do not resuscitate order was done 2004 as my condition worsened when i transfered to palliative care we as a group did my...
  5. J

    INTUBATE

    :cry: HI, I have just come back from the emergency room where my younger brother was admitted early this am. He is having trouble breathing and they have placed him on the bi pap mask and the doctors the emergency doctor and two neurologitst on staff talked to the family today and told us we...
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