nursing home

Hi everyone Today has really been along day with my pals as he woke up this morning wanting to talk as we usually do and he began by telling me how good of a caregiver I am so ok. Then he says he starved for affection! Huh! Like are you serious I try to hug kiss caress say kind words all day...

Hi to everyone its been awhile since i posted on here lots of changes with my PALS. So last time i was here i talked about how the his kids kind of attacked him about life insurance policy. Well time has passed and i am no longer angry but i still dont trust them. Since his diagnosis in May 2015...

Can anyone tell me what specifically qualified yourself or your loved one for the VA special monthly compensation in thr SMC r category as your ALS progressed? What did your approval reason letter say? Trying to figure out for spouse if he will ONLY qualify once TOTAL paralysis with loss of...

I am awaiting a neurologists exam with further testing to either rule out or rule MND as my doctor refers to it. I am now 53 years old. My symptoms started about 1 1/2 years ago. Over that time, I have lost over 60lbs, unexplained weight loss; despite trying to diet other times in my life, I...

My grandmother (87yo) started with right arm numbing over the winter. January, maybe? It gradually got worse to the point that she couldn't use the arm anymore. No one could figure out what was going on. At the end of July, she fell in the tub and then passed out and ended up in the ER. She...

My dad is still hanging on. We started feeding him Ensure through the tube, an ounce every hour, he's getting more water than before and seems to have restabilized where he's at. Yesterday my mother finally made a move to get help. My aunt and I need to leave the first week of November and...

A couple of months ago we finally got set up for home health assistance. The VA pays for 10 hours a week, and we have it set up 2 hours a day Monday thru Friday. In addition to that, we've been paying for a couple of folks for a total of forty hours. All of this is to make sure someone in...

Hello, this is a long time coming in joining a forum-been dealing with ALS for 5+ years. First as caregiver once a week and now a visitor to the nursing home. My aunt was diagnosed in late 2009 and is in her final stages of the disease. We have noticed a sharp decline in her breathing lately...

To California residents who are on hospice or will need hospice services in the future: Below is the text of a letter I sent to the Director of the California Department of Public Health (CDPH) requesting clarification and enforcement of existing regulations that are being routinely ignored by...

Well my father has Als. My sister has been the current caregiver but she no longer wants to do it. A lot of issues there to be honest. She is now single and wants freedom. Well now I don't know my options. My father lives in Maine he is semi mobile and he mostly afraid of falling. He has very...