morphine

  1. S

    End Stages

    Hello, My mom is in the end stages of ALS. We had in-home hospice for a week when we decided together to go to the in-patient facility so she could be more comfortable as the meds at home were not doing enough. We’ve been here almost a week now and she had been more comfortable but now I am...
  2. C

    Respiratory Onset- Update

    Thought I would give status on my husband for those few with this ALS type. After 10 months of tests, his final diagnosis was July 2017. He is weakening and hasn’t left house for several months. Just better since breathing is very tough. He is on trilogy 18 hours a day. A blessing that...
  3. P

    Need advice

    My husband was diagnosed 3 weeks ago with ALS. He is declining very rapidly. Hospice is helping us. He is bedbound, unable to move any part of his body except his head. Urine is dark. They said his kidneys are the reason. Appetite is minimal. Speech is almost imperceptible. Coughing and...
  4. T

    No Hospice

    So we are being told that since my sister is on a bipap machine that medicare will not pay for hospice. Some say that they will take her but eventually she will have to come off of it since its "prolonging her life". My question is for the CALS that have gotten hospice. What all do they do for...
  5. L

    Dad is actively dying

    Hi everyone, my Dad is now actively dying. He started rapidly deteriorating over the weekend. He couldn't inhale well and was gasping for air. He stopped tolerating his tube feedings and were increasing is morphine and Ativan doses everyday. On Monday the hospice determined that he was eligible...
  6. O

    Respiratory Failure on Trilogy

    My dad was diagnosed in May last year. Within 3 months he was in a wheelchair and 3 months after that his speech started to go. He is now in the end stage - no speech, no arms/legs, and unable to swallow. His FVC was 24% in January. He had been using the trilogy mask at night, but over the last...
  7. T

    no sleep for 72 hours

    So my sister has not slept since Wednesday. I am concerned cause everything that we have tried is not working. With all her meds she takes every day and she gets Benadryl, morphine, melatonin, on and on - Xanax! She used to sleep like 20 hours a day and now she is not sleeping at all. Has anyone...
  8. L

    My Dad

    So... I have only posted once after my dad was diagnosed last year. Since that time he and my mom moved in with me. (last July) He has a feeding tube and has been hospitalized 3 times with a variety of issues. He is on a trilogy ventilator with a noninvasive mask. He has lost all speech and has...
  9. L

    Guidance Needed

    My PALS friend has taken a turn, her husband is in the hospital with his own illness, her son is worthless and her caregiver is calling me for advice. As a background, she is not on a bi-pap, does have a feeding tube, only can move her neck and has some speech left. She is on small doses of...
  10. N

    Allergic to morphine

    My honey decided it was time to go on hospice care last week, All was going well, a few new meds to help with the respiratory distress and a nurse a phone call away! Very nice until Sunday morning, I realized his lips had swollen over night till they looked like Mik Jaggars' lips, One of his...
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