feeding

  1. S

    Feeding tube declined

    My Dad is now at the stage that he is having trouble swallowing. He can still walk and talk (minimally) but his main issues are with breathing and now swallowing. He has declined the feeding tube twice, last time was in August when he went to the appointment for the tube surgery and an hour in...
  2. T

    Ground Hog's Day

    Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011. The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...
    • Texans 2014
    • Thread
    • back children eyes family feeding grant heart hours life love night paralyzed peg respite sleep van ventilator work
    • Replies: 8
    • Forum: Current caregivers
  3. Z

    alternative to feeding tubes

    hi, my dad was diagnosed with ALS last March. Now he is on Philips respironics almost 20 hours per day. Eating is a challenge for him and leads to fatigue and weakness. He also has heart disease and high blood pressure. Other than feeding tubes, is there any alternative way to help him with...
  4. dkcarl62

    Sleeping all the time

    Greetings friends, Asking for your input for a increasing concerning problem. I can't stay awake. I fall asleep while getting my nails clipped, taking a tube feeding, in the middle of writing an email, in the middle of doing exercises. It doesn't matter if I just woke up, I could go right...
  5. B

    First to go, voice or ability to swallow?

    Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...
    • Brandi
    • Thread
    • ability breathing breathing issues clinic confused diagnosis dysphagia early feeding feeding tube helpful oxygen problems research respiratory sleep speech stats swallow tongue vision voice weakness
    • Replies: 28
    • Forum: Could this be ALS?
  6. tripete

    Things that you do not hear about ALS

    In June of 2016 I posted a thread about Pain in ALS and how the "experts" tell us that ALS, as defined by the dying/malfunctioning of our motor neurons, is not painful. As time has progressed I have found many other things that "they" tell us are not issues that are. Like Smell, Bathroom...
    • tripete
    • Thread
    • age als bipap breathing coughing cramping cramps diaphragm dying family fasciculations fatigue feeding fingers foot grace headaches muscle muscle pain muscle wasting pain phlegm sleep venting work
    • Replies: 47
    • Forum: General discussion about ALS/MND
  7. L

    Eating Food with Vent/Trach

    My boyfriend is newly on vent/trach. At the hospital we were told by an MD that he will not be allowed to eat or drink again (he has a feeding tube). At the L-Tach rehab the speech therapist gave him mashed potatoes and he aspirated them and then got pneumonia. He eventually went to...
  8. T

    Exhaustion

    About a month and a half ago or so, my energy level just plummeted off a cliff. It's a struggle to do anything. I get really tired going up stairs. I get tired walking. I get tired feeding. I usually don't really get out of bed until noon. I manage to get a couple feedings in before that, but I...
    • Twitcherama
    • Thread
    • age back bed botox breathing depressed exhaustion feeding hours saliva sleep therapy ventilator
    • Replies: 8
    • Forum: People with ALS (PALS)
  9. B

    Need advice-pALS with new baby

    Hi everyone, need some advice/suggestions from the group. A little history, I first noticed symptoms in 2013 and after 3 years of doctors, tests and surgeries I was diagnosed Dec 2017 with UMN predominate ALS. We then found out in February of this year that we were expecting our 3rd child...
  10. H

    The strife is o'er, the battle is won

    My beautiful sister died very unexpectedly of complications of ALS in the middle of the night last night. She had just been in the hospital for replacement of her feeding tube, and the Hospice nurse had examined her a few days ago, and no red flags were raised except for the fact that her blood...
    • Hewitt
    • Thread
    • als breathing breathing issues death feeding feeding tube free grace hospice life love night pressure
    • Replies: 16
    • Forum: In memory of
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