early

Hey all, Have only posted once or twice before. I'm the caregiver for my partner, Mike, who has been diagnosed since August 2011. He uses a power chair and a feeding tube (although he's fortunately still able to enjoy a beer every night), a sip and puff respirator as he needs, and we use a...

I was diagnosed with progressive bulbar palsy in January. My speech has been increasingly difficult to understand but I expected that. I am noticing difficulty with breathing in the last two weeks. If I cook, it is hard to breathe. If the house is too warm, hard to breathe. I can’t seem to...

Hi everyone, I’m a 27 year old male. I recently concerned about ALS a lot, would like to get help. I recently experienced an unusual shake in my left hand when using a spoon, 2 days later it becomes weakness in my left hand and my fingers became less flexible, and my right hand started to have...

Hi all, I've read Dusty7's post "Read Before Posting" and found it very informative but I'm still in need of some advice. Since early February I have been experiencing widespread fasciculations, difficulty swallowing which comes and goes, slurring of my speech and some left side tongue...

Hi people, my name is Paul and nice to meet you all thank you for allowing me into your community. May I please seek advice before I head to a Neuro... For the past 3-4 months, I have been getting crazy crazy twitches in my left arm and leg. When I lay on my bed the amount of twitching that is...

To begin with, I have seen a neuro. I have diagnosed IIH (high intracranial pressure) and already had a follow up appointment where I mentioned these new symptoms. I am awaiting CPK levels. About 1 week ago my lip froze. I couldn't move it - it was just my upper lip and it drooped down and...

Hi all, I know you get a lot of hypochondriacs here claiming they have ALS and I hope I am not wasting anyone's time. When I have browsed forums about people asking do they have ALS many talk about symptoms coming and going and as I know ALS worsens over time and does not get better or do you...

I am having a lot of my body involuntarily stretching (my legs and trunk mainly) in the middle of the night and early morning. I can't stop it from starting, but I can sometimes force it to end prematurely if that makes sense. The problem is, the stretch causes painful cramping and this thing...

I have already read the sticky note but I just have some questions I need answering. Sorry if this seems long or you have read this before, I just really want to make sure. My symptoms: -Muscle twitching all over body (Legs, Back, Arms) I will say it started a few days ago and I was really...

I have read stickies and discussions above. I should start with I’m 24 year old male who has health anxiety. A couple months ago I had pins and needles sensation throughout my entire body. From then I would have days of all limbs feeling fatigued and tired. After that I had a near syncope...