clinic

  1. JohnnyMags

    Post Clinic Question

    OK we are a day after our clinic visit and I have to ask this first. My wife is in dire need of a power lift recliner. I asked about that at the clinic but they kind of brushed that aside. Who do I contact for that? We have Medicare with an Aetna supplement. I heard about medicare only...
  2. JohnnyMags

    ALS Clinic Visit

    Well we went to our 2nd ALS Clinic meeting yesterday (5/20) at Temple. Talk about good news it turns out my wife doesn't have ALS or any neurological disase ........... Back to reality that last sentence isn't really true. In our various doctor and clinic visits it's been my dream that they...
  3. steve913

    Als diagnosis confirmed Mayo clinic Rochester Minn May 2

    i started with left foot drop started 5 months ago early november 2024. Unable to walk without walker left ankle also frozen with the footdrop by february Two weeks in hospital feb10th to 24th and under went Plex treatments Pletherisus plasma anti body exchange no improvement after 4...
  4. Tholsclaw

    ALS Clinic in Charlotte- Any tips or tricks?

    I'm being sent to the ALS clinic in Charlotte by my Neurologist, mostly for a second opinion (strong family history). I've read the first clinic visit suggestions. But are there any other suggestions regarding traffic, parking, or anything else I should know. I'm completely mobile, independent...
  5. I

    Day 1 of 2 first clinic visit

    We went to clinic for the first time today. Lots of tests but nothing different from was done before. My husband was a little frustrated about that. We thought there would be a bunch of different tests like a muscle biopsy or something like that. He also wanted to know how long he has. Dr...
  6. Tomswife

    50 ways to leave your clinic

    Slip out the back. Make a new plan. We are done. With the clinic that is. Too many balls dropped. Too much effort on my part pushing for care. Too many delays of weeks and weeks. Screw ups. If they really have 500 patients. They now have 499. - made virtual appt with the neurologist...
  7. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
    • judy.king
    • Thread
    • als balance chair clinic cramping decline diagnosed diagnosis do i have als emg fasciculations foot foot drop medical mnd neurologist onset pls power questions speech symptoms symptoms of als tongue work
    • Replies: 5
    • Forum: Could this be ALS?
  8. K

    Drastic change in breathing

    Hi everyone. My dad was diagnosed March 2018 with ALS. He has limb onset. His breathing, swallowing and talking have not been affected as of yet. ... so we thought. Today he had a breathing test. His score is December 2018 was 92 and today it was in the low 60s. That seems like a drastic change...
  9. ShiftKicker

    For Canadians interested in Radicava

    The CADTH (independent advisory body Health Canada consulted with) has published its recommendations on Edaravone use in Canada based on their research and consultations with ALS patients, caregivers and other health professionals. From ALS Canada The report can be found here...
  10. D

    Peoria Illinois Clinic

    Has anyone gone to the ALS Clinic in Peoria?
Back
Top