clinic

  1. I

    Drugs and PT for PBP?

    I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast. Until about...
    • Idaho2790
    • Thread
    • als bipap botox breathing christmas clinic cough assist diagnosed drugs exercise health life pbp physical therapy problems progression saliva speech swallowing therapy walker
    • Replies: 1
    • Forum: Progressive bulbar palsy
  2. K

    Jacksonville Florida; UF Shands or Mayo ALS Clinic

    I’m looking for pros and cons for the UF Shands and Mayo ALS Clinics in Jacksonville, FL. Any input is greatly appreciated. Thank you very much.
  3. B

    MIL Diagnosed

    My MIL started showing symptoms in June 2018. It started with back pain and slurred speech and progressed from there. In August she needed a cane to walk, and by September a walker. We had began seeking answers from her PCP and a Neurologist who couldn't give us any answers. The only thing...
    • berlies
    • Thread
    • als back choking clinic dad decline diagnose diagnosis early father feeding tube go away hospice lift neurologist pain progression respiratory slurred speech speech support symptoms test wanted wheelchair
    • Replies: 13
    • Forum: Newly diagnosed
  4. S

    Progression in symptoms - need of advice please

    Hello, and first of all, I wish you all the best you can all get for 2019 including love and peace in your souls. I posted here a few weeks ago, as I was concerned with a myriad of Symptomes including feeling of weakness in arm and one leg, beginning of fasciculations, a number of sensory...
    • shine81
    • Thread
    • advice als arm back bulbar bulbar als clinic cramping emg fasciculations money muscle neurologist onset pain progression shoulder slurring words speech swallowing symptoms tests tongue urgent weakness
    • Replies: 7
    • Forum: Could this be ALS?
  5. Kristina1

    update on me

    I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
    • Kristina1
    • Thread
    • ability als book christmas clinic dying family fingers holiday hope hours insurance kids love media night pwc update wanted wheelchair
    • Replies: 15
    • Forum: People with ALS (PALS)
  6. M

    Als florida clinic referral.

    Has anyone in Florida been to The UF als clinic in Gainesville? I live in the Orlando area
  7. A

    Controversial neuro exam

    Thank you in advance for reading my post and apologies if some of my questions are not consistent with the sticky notes. I am 27, male. For the past four months I have perceived weakness and feeling of numbness in left arm and leg which tend to come and go. The numbness is usually more...
    • andrewdunn
    • Thread
    • anxiety arm back clinic confused emg ice mri muscle onset questions reading sensitivity symptoms tests twitching umn weakness worried worry young
    • Replies: 5
    • Forum: Could this be ALS?
  8. C

    BiPAP or CPAP??

    My Dad goes to his sleep clinic appt tomorrow and I wanted to get some insight and advice from other PALS before. He did an over night sleep test last week and found out that he has sleep apnea. Tomorrow he goes to pick up a machine from Mainland Sleep. The sleep technician said he should...
  9. K

    Grief/ Crying/ Can't Breathe

    Sadly, my sister passed away last week, and the family is gutted. She was a bright light, and we miss her terribly. My 87 year old Mum is grieving hard. Yesterday she was crying with full abandon, and suddenly felt she couldn't breathe. I've read here before that PALS can have spasms, and...
  10. D

    Don’t lose weight has been the advice.

    The ALS Clinic and some places on this forum indicates not to lose weight. One of the first symptoms I noticed was that I was losing a little weight, but was gaining around the middle. It seemed to me that this was the result of atrophy and I conveyed those thoughts to my first neurologist and...
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