chair

  1. J

    How are you?

    How I hate that question now. It's become almost a default greeting. I know most people are trying to be kind by asking, but I honestly don't know how to answer anymore. I usually just say "We're OK" or "We're hanging in there". But honestly, we're not OK. And I'm sometimes just hanging...
    • Jrzygrl
    • Thread
    • angry anxiety back bed chair cold crying decline frustrated heart hours life meds night progression sad sling story wanted wrong
    • Replies: 153
    • Forum: Current caregivers
  2. P

    Waiting and worrying

    I'll try to keep this as succinct as possible. I have been experiencing a variety of symptoms for several months. Symptoms have included; shortness of breath, fatigue, tripping/falling and most recently atrophy and weakness in my left leg. I have been evaluated by a pulmonologist...
    • plcare
    • Thread
    • age atrophy brain chair diagnosis emg exercise falling fatigue health ideas immediately lift mri muscles neurologist shortness of breath symptoms tests wanted weakness work
    • Replies: 9
    • Forum: Could this be ALS?
  3. Jamesgol

    Wheelchair & van advice?

    I have now reached the stage where a wheel chair and van combination are needed. My neurologist just wrote the prescription for a wheel chair yesterday. The ALS Society is going to loan me a Permobil F3 until I can get one of my own. Which type of wheel chair (and options) do you prefer? What...
  4. T

    Rectal burning sensation (sorry to be so blunt)

    Does anyone have trouble with rectal burning made worse when sitting in the power chair? Multiple cushion combinations have been tried and every over the counter remedy has been tried. Prescription level lidocaine and pain relievers including Norco. I'm currently on gabapentin and Lyrica in...
    • tlhowell
    • Thread
    • burning chair constipation gabapentin hours lead life pain power power chair problems
    • Replies: 4
    • Forum: People with ALS (PALS)
  5. E

    Won't go to the Hospital Bed!

    Cals here. Husband dx in 2013. For the last two years, he has lived in a recliner (sleeping there). Of course, goes to the power chair when need be. But, now he has zero neck muscles and needs suctioning several times a day. We have a wonderful hospital bed with all the bells and whistles...
    • Emily B.
    • Thread
    • back bed cals caregivers chair muscles power power chair work
    • Replies: 12
    • Forum: Current caregivers
  6. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
    • TulipShell
    • Thread
    • advice age als arm balance breathing chair diagnosed diagnosis family feeding feeding tube lift night onset reading shower shower chair speech swallowing symptoms testing
    • Replies: 8
    • Forum: General discussion about ALS/MND
  7. KarenNWendyn

    Good one-line jokes

    I found these on line. Enjoy. Today at the bank, an old lady asked me to help check her balance. So I pushed her over. I bought some shoes from a drug dealer. I don't know what he laced them with, but I've been tripping all day. I told my girlfriend she drew her eyebrows too high. She seemed...
  8. K

    Also...Slow or Fast Progression?

    Karen, I must admit I am wondering the same thing...slow, fast, average? I know today is a gift, we should live each day and day by day, but my wondering has to do with decisions that need to be made. My PALS was diagnosed in January 2018 with symptoms becoming very noticeable in August 2017...
    • katygal
    • Thread
    • alsa breathing chair clinic diagnosed equipment feeding feeding tube fvc hospice lift money progression pwc symptoms trilogy
    • Replies: 6
    • Forum: General discussion about ALS/MND
  9. L

    Rebuilding

    This will probably be my last post on the forum. At the time of Eileen's funeral I weighed 122 lbs, I am now at 134 lbs. I'm not sure if it is just my nature or my strong belief in God, but even before the funeral, I felt that God did not want me to waste the rest of my life in grief. I made...
    • Larrytbm
    • Thread
    • als caregiver chair equipment grief handicapped van life locked in medical medical equipment mobility van worry
    • Replies: 4
    • Forum: Past caregivers
  10. 1

    What do I have?

    So glad I have found this group. I have some serious symptoms and questions about tests that I hope someone can answer for me. In April of 2017 I started falling for no reason. My knees would just buckle and down I would go. I fell at least once a week thmonth of April. Then I would go about...
    • 1sunday
    • Thread
    • als? back brain chair emg falling fell heart hope lift medicine mri muscle neurologist night pain physical therapy research shoulder stress symptoms tests weakness wrist wrong
    • Replies: 11
    • Forum: Could this be ALS?
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