Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...
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Yesterday we had our first ALS Clinic visit. I think my PALS was overwhelmed by all of the people. He says he is very tired.
He was diagnosed 3 1/2 years ago but was pretty much on a plateau until about 2 months ago when he seems to have fallen off a cliff. For the first 3 years his left...
My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
Hey everyone!
Today my father had a breathing exam and, as it has been the case since he is testes, the results were perfect. In the past two years and a half since first measured, there has been no observable decline as measured by any indication of respiratory function.
Given these results...
My PALS has been using a Trilogy for the past year. His latest FVC was 26%, with MIP at 20 and MEP at 32. We can tell his weakening muscles continue to affect his breathing, just since Clinic in February. He had some issues with air hunger at night and increasing EPAP from 6 to 8 took care of...
Thanks to you all for taking the time to read this post and answer my questions.
I'm a 42 year old Male. For the past month my tongue has felt extremely swollen and sometimes sore towards the back. Occasionally I will get tingly/crawling feelings on the side. It is difficult for me to...
So I got emg Monday but I’ve been having weird problems with my right side and he did left I asked him after why he didn’t do right and said he wasn’t checking for als for me cause I have no signs of it and said abnormaliltys would show up anyway cause I’ve been having 4 months of symptoms the...
Hi everyone.
First time poster, I first want to thank all of you for what you do on this site. Truly inspirational.
I will be brief. My symptoms are twitches mostly in left calf ( about a month now) but sporadically other places ( all over).
I have no clinical weakness that I can discern...
Hi all,
First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all over...
Hi all,
First of all, thanks in advance to anybody who takes the time to reply to my post.
I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all...