breathing

  1. D

    Bulbar ALS?

    Thanks to you all for taking the time to read this post and answer my questions. I'm a 42 year old Male. For the past month my tongue has felt extremely swollen and sometimes sore towards the back. Occasionally I will get tingly/crawling feelings on the side. It is difficult for me to...
  2. C

    Just a question

    So I got emg Monday but I’ve been having weird problems with my right side and he did left I asked him after why he didn’t do right and said he wasn’t checking for als for me cause I have no signs of it and said abnormaliltys would show up anyway cause I’ve been having 4 months of symptoms the...
  3. R

    Advice about EMG result

    Hi everyone. First time poster, I first want to thank all of you for what you do on this site. Truly inspirational. I will be brief. My symptoms are twitches mostly in left calf ( about a month now) but sporadically other places ( all over). I have no clinical weakness that I can discern...
  4. M

    concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all over...
  5. M

    Concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all...
  6. ReginaS

    breathing difficulties

    Hi all, My PALS describes that he has the feeling that the air passages in his head (above throat) are not staying open but collapse or close when his head is in certain positions. Do you know what is happening? He is uncomfortable lying down, elevated lying on one side is OK - on the other...
  7. M

    Young male bulbar symptoms

    I posted two years ago but was unable to post on that thread but it had been closed. During the time between then and now for the most part I was able to move on from my fears of ALS. However that has changed recently as I have developed a mild slur, not noticed by normal folks but was...
  8. Jamesgol

    How much Trilogy?

    I've had a Trilogy 100 for a month, even though I have no problems breathing. When they tested me a month ago, I was at 90 and 64. But they kept having me blow over and over until I finally blew one under 50, which qualified me for the Trilogy. The RT came to my home and setup the Trilogy. She...
  9. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
  10. K

    Optimal living situation- financially, emotionally, spiritually etc

    My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing. We have been discussing living arrangements as her mobility and breathing decline. Other pALS out there, what did you decide? Did you...
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