breathing

Hello all and thank you in advance. My name is Mike. I'm 25 years old, turning 26 next month. Surprisingly, in the face of what I wholeheartedly believe is an onset of ALS, I'm doing an okay job of trying to stay calm, but still very worried. I've always had an odd anatomy. God gave me a bit...

(Sorry i first posted it by error in the general feed) Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences. I am writing here as I have been experiencing different health problems for a while...

My 87 year old mother just got her BiPap machine four days ago. Therapist set it up for her, and the rental unit relays info by wifi to the therapist's office, and he can control it remotely. She felt like it was blowing air too harshly into her lungs over the weekend, and I asked him to dial...

I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast. Until about...

Hello All, I want to first say thank you for taking the time to read this post. I have avoided posting here for about 1 year but due to changes recently I have decided, still with some hesitation, to post. I was going to write more of my history but I do not want to take up your time any more...

Hello all, After a hairy morning of my mother's sudden and repeated laryngospasms, I found these two short videos online, which explains the causes, and a technique to deal with it and how that works. "Just" relaxing helped, however, I'm looking forward to introducing straw breathing technique...

Hi all, Just wanted to underline how grateful I am for this forum. This morning, Mum had her first really rattling experience with trouble breathing, a series of spasms that wouldn't allow her to get her breath. Because of how PALS and CALS share their experiences here, and I've been reading...

Finally, here. I have been a longtime lurker. I have been tempted to ask questions, but ultimately I decided to wait. And I waited for a long time. Having been finally diagnosed, I will let you know how everything began. In the spring of 2016, I started noticing some problems with my left...

I want to thank you all in advance, and let you know that I will not dispute your suggestion (and only welcome it) if you don't think ALS is a possibility in my case. I also want to let you know that my thoughts are with each of you that have been diagnosed or have had a family member diagnosed...

Hi everyone and thanks for taking the time to read my post. I am currently crippled by the fear that my worsening symptoms suggest ALS. For a time I put them down to anxiety but I can no longer accept that explanation as everything just seems too coincidental. It all started in August- I...