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Hi, I changed out my peg tube yesterday, and, if you're curious as to how the MIC-KEY and AMT Mini One compare with each other, before I put the new peg in, I took a few photos of it alongside the other model button. When my long dangler tube was first switched out to a low profile type...

Hello everyone, I just now posted about this in the general discussion forum, but wanted to make mention here too. I had started a blog on tube feeding, but did not develop it, nor keep it active. After almost two years of it just languishing (and me paying for web hosting!) it is now up and...

It has been a long time since I dropped off of this forum. The losses of those I'd grown close to got to be too much for me. I grew to feel overwhelmed with a kind of "survivor guilt". And, it breaks my heart now to see who has passed, without me knowing. However, it was good and much...

Okay, I have had a full month past my husband's Dx of positive attitude. Yes, I know many PALS and CALS have had years of it. Thing is, who wants to be either one? We know the answer to that. I was looking at pictures of myself as a kid, and I felt sorry for that little girl who grew up to have...

This past week it really hit me that my caregiving duties have robbed me of my wifedom. I am no longer the woman he takes care of, and that has stolen something precious. He gave me a beautiful piece of jewelry for our anniversary, and the look on his face has I told him how much I love it...

I have a blog post that explains my current situation(not als but other rare Nero condition) but anyone get a Mickey vs peg? I have autistic 4 yr olds that climb on me and I fear peg being ripped out.. Thanks

Hi, Pam here. My husband Jim was diagnosed in January(bulbar onset.) Has lost most of the use of his hands and very little speech left. As he loves to say when he's asked how things are going he's "Still walking". He still has a great sense of humor. He's also got some FTD going on...so things...

This article really spoke to me. Maybe it will others. How to Recognize Signs of Anticipatory Grief

Hi all, in case anyone is interested, this is my blog I started chronicling mine and my husband's lives and firsthand experiences with MND. He has since passed and I have started it back up again two years later as I try to piece my life back together, documenting my travels and healing...

Hi! Recently diagnosed and new to the whole blog/forum thing! Looking for any advice or info from other people going through similar things. Thanks