blog

  1. H

    Posted blog instead of thread

    So I'm new and accidently posted a blog instead of a thread... was wondering where I could find my blog entry so I could copy and paste it? Thanks!
  2. A

    Emg, twitching, atrophy?

    Hi first time poster but have been reading here and bfs forum since last August when my symptoms started. I accidently sent my full post to blog instead of a thread so here goes. I'm not looking for a diagnosis but maybe some insight and an answer to my Emg question. In August of 2016 I...
    • Amy37
    • Thread
    • als als symptoms atrophy back bfs blog brain cell diagnosis emg eye family fell finger foot heaviness immediately pain reading shoulder stroke symptoms twitching vision work worries
    • Replies: 2
    • Forum: Could this be ALS?
  3. K

    Not sure whether it is ALS

    Hello all, I have a friend named Mike who met with an accident 3 months ago. He had minor head injury and was temporarily paralyzed for 1 month. After a bed rest for 1 month he had great improvement in his health. Recently he has difficulty in lifting things. He is not even able to lift a pen...
    • KathyNam
    • Thread
    • als als? bed blog friend health improvement life muscle muscle weakness paralyzed scared swallowing symptoms symptoms of als weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  4. A

    Three years and still going!

    I tried to add this as a blog, but thought I would put it here as well. Three Years Today I celebrate the three-year anniversary of the worst day of my life. I was so scared that day, looking ahead to life in a wheelchair, giving up all independence, and being such a tremendous burden to my...
    • azgirl
    • Thread
    • awareness blog cure diagnosis eye family food guilt ignore lead life love nose scared support wheelchair
    • Replies: 8
    • Forum: Stories of hope
  5. rose

    Tube management belt

    Hi Everyone, I'm just swooping in and out again. I found a shop that makes custom belts to help with holding the pet tubing, etc. The post about it is up on my blog: Tube management belt for the Danglers out there. | Tube Chic
  6. rose

    A post for women with bulbar

    Hi everyone, I was torn as to which forum I should post this in. When I scroll down the PBP Forum, it does not seem super active. It was a toss-up between the PALS forum and this one, so I'm putting it here. If a moderator wants to move it, that is a-okay with me. My blog is mostly about...
  7. M

    RCH4 Drug stopped by Dr. Bedlack

    Moderator's note: This topic was explored some months ago in this thread. dr bedlack designated eric valor as the lead investigator for the rch4 review on behalf of alsuntangled (alsu). a review for alsu should be conducted in the following manner, according to the alsu website (2 minutes into...
    • mich5
    • Thread
    • blog cure data immediately information lead money website
    • Replies: 61
    • Forum: Research and trials
  8. rose

    more adaptive alterations posted!

    Hi Everyone, I've been working like mad, trying to get more content into the clothing alterations section of my blog. The latest addition is a long black turtleneck sweater. Altered long black turtleneck | Tube Chic
  9. rose

    Directions for making access hole in underlayers of clothing

    I'm working hard to get more content added into the sewing and adapting clothing section of my blog. There will be more (hopefully by the end of next week) but, today I did put up a short post with directions for making an access opening for undershirts. Its nice to have a layer under my...
  10. rose

    The Lopez Valve

    Hello PALS and CALS, I recently ran across the mention of a "lopez valve" on another website. I was curious, ordered one from Amazon, tried it out, and wrote a short review of it on my blog. There seems to be very little talk of it here on the ALS forums, when I did a search, the only thing...
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