I was adopted when I was young and did not know my full medical history. I just discovered that the C9 mutation runs in my family. Over the last 4 years, 3 people have died from this - my uncle and aunt from ALS and my mom from FTD. I am unsure if anyone else is currently affected in my very...
As it's been almost a year now since My Lizzy passed and as some know I have someone new in my life whom I think the world of. My G/F was very upfront about her Bipolar M/D condition right from when we started just chatting as old friends about How I was doing and if the kids needed anything (...
My wife has Bulbar ALS, diagnosed since Oct. 2016. Some background prior to her diagnosis is necessary to get context:
My wife, myself, and our now 19 yo daughter moved from RI to FL to care for my 91 year old Dad in July 2013. We moved in with him. He was very demanding and...
Hi im a native American 33 year old and suffer from anxiety bipolar. I've been noticing and feeling twiching some on my leg and when i hold my arm out for a few. Been to 3 doctor's and they told me im fine even with crampy feeling on arm. Been going on for weeks maybe longer and i didn't notice...
I just want to thank you first, for reading my post, and answering it to the best of your ability. THANK YOU!
Ok, with that said, I'm concerned with some of my symptoms. I've had twitching throughout my body for about 1 year. I went to the doctor 11 months ago, and he recommended that if...
My wife, whom we suspected had bulbar ALS for months but she refused any intervention, was "leaving me" and packed her bags. Before she left she call 911 and she had herself removed from our home. She put an abuse charge against me with Adult Protective Services, while at the hospital...
I was reluctant to post here because we don't have an official diagnosis yet. My wife's father died of Bulbar ALS at age 66. My wife is 60 and she has had poor speech for over 2 years. She has lost significant weight and is probably down to 100 lbs now. She is 5'2". Her speech is very...
Hey guys, been running from the dreaded ALS for a while now. It seems like it is inevitable at this point.
Presented with eye fatigue, breathing difficulty, and weakness in one of each limb. Twitches started in legs at the same time I noticed the llimb weakness.
Not much long later, I had...
motor neuron disease
THE idea of putting a mind-altering drug in the drinking water is the stuff of sci-fi, terrorist plots and totalitarian governments. Considering the outcry that occurred when putting fluoride in the water was first proposed, one can only imagine the furor that would ensue if such a thing were...
What a great group of people you all are -- thanks for providing this service! My sister has an important neurologist appointment on Wednesday, and I'd love some advice on the questions we should be sure to ask.
She has dramatic weakness and wasting of her thighs/quads. Some weakness in her...