Search results for query: radicava

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  1. A

    Radicava trials

    My Neurologist said that in a clinical trial in Europe Radicava is not making a difference in ALFSR-R scores. I was wondering if anyone else’s Dr told them about this trial?
  2. K

    Radicava Coverage

    ...a problem.. So far the only real practical symptom I have is mild dysarthria so all is good.. My only problem is that Kaiser will not refill Radicava for more than 1 month at a time due to cost they say..We travel a lot as we are retired and I am still healthy. I was wondering how common it...
  3. Colleen15

    Starting Radicava oral

    Hi, diagnosed 3/2023, bulbar onset. I am starting Radicava oral in a few days, Any side effects experienced? I also take Riluzole. Thank you.
  4. M

    Radicava Coverage

    Premera approved my husband’s prescriptions for Radicava ORS and Relyvrio for either 6 months or a year (I can’t remember right now and I don’t have the letter nearby). He’s stopped the relyvrio due to the trial failure, but is still taking the Radicava. We get it through Accredo. Oh whoops -...
  5. Nikki J

    Medications

    ...the three r’s but it isn’t until March Webinar on the three R’s Insurance companies hate paying for expensive medicines which relyvrio and radicava are. They often make their prior authorizations mirror the trial participants as a way of gatekeeping. Radicava had a cutoff svc of 80% I...
  6. A

    Radicava trials

    Thanks for link. I think this will be my last round of Radicava.
  7. Nikki J

    Radicava trials

    That was the ADORE trial which did indeed fail. It technically wasn’t radicava but a slightly different formulation. Radicava ors is 105 mg dose this was 100 mg. It also had a slightly different formulation. One was granules. The other an oral suspension. MT pharma claims this makes a...
  8. Nikki J

    Edaravone

    This is the edaravone study using a formulation developed in Europe. It definitely raises questions about radicava and I encourage people to discuss this with their neurologist. I don’t take radicava and never thought it worth pursuing but i am almost as different from the Japanese trail...
  9. lisa g

    Radicava Coverage

    From my understanding, I get my Radicava from CVS Caremark and they will only dispense the drug in 1 month intervals due to expiration date of it. My insurance requires prior authorization from my neurologist and the prescription is written for 12 months.
  10. J

    ALS Bulbar Onset: Diagnosed September 12, 2023

    Thanks for the feedback on exercise. I assume return to baseline within one hour means respiratory rate and heart rate. For Radicava, maybe in the next 2 weeks (no Radicava) I will see a difference, as you suggest. Thanks for the riluzole clarification; I didn’t express that very well; I...
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