Also my feet and wrists are shrinking and I confess I'm a little scared about this thing becouse shrinking and atrophy aren't Umn symptoms....my neuro thinks I have some sort of Umn syndrome but I'm afraid I'm developing even Lmn involvment.....I hope this will not turn to be als. Anyway luckily my progression seems to be slow. I'm still waiting to be called for the day hospital and still off from work