Recent content by paul71

Maybe the Do I have ALS forum should be sub-divided. 1). "Hypochondriacs" 2). "Trolls" 3). "I just ran a marathon and my calf is twitching." 4). "I don't care what my 5 neurologists think, I want an amateur opinion". (Moderated by Dr. Bluedog.) 5). "Legitimate questions." Just...

Post went to moderation because I included a link to a website. Check out the American Association of Neuromuscular and Electrodiagnostic Medicine website. They have a state by state listing of doctors and labs who are accredited by them. There are neurologists who do EMGs who are not as...

Check out aanem.org - American Association of Neuromuscular and Electrodiagnostic Medicine. Their site has a state by state listing of neuromuscular specialists and laborities that are accredited by them. At least you won't end up wasting your time going to a neurologist who doesn't specialize...

Are you sure the doctor didn't say that the MRI was to check for MS?

"ALS and MND Support Group Forum... Tips, help, care, support, and friendships..."

Thanks for the replies. He originally precribed 4mg Tizanidine twice per day but it made me too tired at work. We gradually decreased the dosage but then the spasticity and pain got really bad. I'll have to ask my neurologist about his thoughts on Baclofen.

My neurologist recently increased my Tizanidine rx because the spasticity in my legs is getting worse. I have terrible pain in my legs almost constantly. I am now up to 2mg 3-4 times per day. I still work so I have to stay awake and alert. I was wondering, for those with spasticity problems...

If you read my previous post, you'll see what I did to get intermittent FMLA without a diagnosis. But stop insulting all the PALS on this forum by stating that you have ALS! You make these definitive statements like "I have ALS" and that you got it due to exercise that have no basis in fact...

Your fasciculations started in 2001. Clearly it's not ALS. You are much more likely to die of lung cancer than a rare neurolgical disorder.

I think because this is an ALS website, sometimes we get caught up in an "ALS or nothing" mindset. I am in a very similar position to Bluedog - many abnormal EMGs, very weak, impaired function, spasticity, fatigue, pain. But I don't have a diagnosis. But just because Bluedog does not have...

I think this forum is a victim of it's own "success" for lack of a better word. There just aren't many general neurological forums out there that are up to the quality of this place. In my case I know there is something really wrong with me. But I'm not going to waste your time asking...

I had an issue with a skin biopsy. An in-network doctor sent a test to an out of network lab. My insurance tried sticking me for a $2000 bill. Believe it or not, the insurance company (specifically the woman in customer service) was very helpful when I wrote my appeal. She was just a regular...

We are on an ALS forum. OF COURSE most of the cases here turn out to be ALS. Doctors don't START at a diagnosis of ALS. It's almost like you want the disease or something. Yes, my doctors have mentioned several possibilities. Like you, I have had several conflicting EMGs. I actually take...

There's a zillion types of "dirty" when it comes to EMGs. There can be nerve entrapments, spine issues, or muscular problems as opposed to neurological. Even the most knowledgable people here on this forum are kind of guessing. We didn't attend medical school. Even some neurologists are not...

I kept a journal for 6 months, logging all my symptoms and daily activities. Part journal / part diary. But then I started thinking... When I was healthy, did I keep a journal? No. I think journals have a downside. Yes, it's good to track symptoms. On the other hand, I think that...