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It sounds like you are going through the exact same thing as me-
Constant twitching, primarily in calves (particularly after walking) and if I flex my triceps they immediately twitch for 10 seconds or so. It is really scary.
I used to go to the gym 5 days a week but have not been at all now since it seems to make the twitching worse.
Clean EMG, doctor has me on 25mg Zoloft, .25mg Xanax every night before bed...
W
Worriedsick1
Yes this exactly why I followed you. In fact, I was thinking of the same thing about the muscle relaxant affecting the emg hehe. You reckon the twitches have become worse since you started taking these meds? I’ve stopped working out as well. I’m waking up multiple times a night and these twitches are there. People say that EMG are pretty conclusive but I’m still a wreck.
L
Lineker1981
Twitching is same regardless of meds. Might calf is the worst and also cramps.
The clean EMG should make me feel better but I keep reading about cases online of people who had clean EMG's. and later were diagnosed.
Scary. Really scary.
Hi, what you are describing sounds very, very similar to me and also post-covid vaccine. Would you like to connect and discuss this further?
Hello there. Not sure if you are still active on this forum but was curious if you ever received any answers? My situation sounds similar to yours and Lyme has been suggested to me as well. Hoping you found some relief. Thanks.
Just know that whoever you are I’m thinking about you and will pray for you. I pray you get a resolution to your symptoms and that your health is restored.
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Worriedsick1
Hey Crüe, you getting these twitches just in calves mine are widespread 😩. I hope all goes well for you on the 26th
I don’t know you and you don’t know me, but I’ve read your post and can most definitely sympathize with you. I just want you to know you are not alone. I am dealing with twitching and cramping - mainly twitching - 24/7. Mainly in my calves. It is brutal. The worry and fear are overwhelming.
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Worriedsick1
Man, it’s heartening to see this conversation. I felt alone and felt like I was going crazy. But it seems twitching is worrying a lot of people. doc thinks I need couselling for health anxiety. I guess I wouldn’t worry so much if this twitching stopped. But it is such a physically real symptom, makes it difficult to move on.
C
Crue7364
I hear ya both. I’m still having twitches despite my clean EMG. I think one of the things that helped me psychologically was the fact my Neurologist - who had previously dismissed me as ‘anxiety’ - admitted to suffering from twitches for over a year and that he did an EMG on himself over his fears. That and I’m just tired of being afraid.
C
Crue7364
If any of us get this terrible disease it isn’t any of our faults. Nothing we do/don’t do can change that fact. I’m still praying and will continue to do so. Now, for both of you!
Hi Sassy, i hope your husband continues to do as well as can be. We had a brief exchange in regards to your husbands frail leg and my dads frail arm dx. We are in process of getting approved for Radicava, doing a FVC test recently. I dont know many with flail variants through this process
M
Mon
Thats such great news. Im so glad to hear no progression. My dad is doing okay. The arms have become weaker and a few fingers are involved. Id say its progressed in last 3 months. Its been 2 years since onset. 1st year left arm, 2nd year right arm involved. Id like him to focus on trying to gain some weight but he isnt overly hungry.
S
sassy
Maintaining the weight is also an issue for us. My husband has to eat thousands of calories a day.
M
Mon
Ive read a couple sites and on this forum that high calorie smoothies are a good idea. A quick way to consume up too 1000calories if you build a good drink. My Dad thank god has no issues with eating, swallowing or talking but doesnt seem to eat enough.
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Καλημέρα! 5,2021 Μαΐου έκανα EMG που δημιουργεί φυσιολογικά 10 ημέρες πριν από κάθε φορά ο πόνος και ο διάμος στο αριστερό γόνατο και κάθε φορά που ανεβαίνω, κάθε φορά και στο ένδυση γόνατο, διανύσματα και στον πόνο στην κνήμη, εφαρμογή αγκάθιες και εφαρμογές αγκύσεων για την εφαρμογή. Συμπληρωματικά, αποκαθάνομαι تلاش κολλημένο στη στοματοπαράγα από τον Φεβρουάριο και φοβάμαι διά διάασασή ξεκίνησε το ALS. Ευχαριστώ
hello I'm from London i hope you reply i saw in your hands the same spots that i have and red palms i have mild twitching aswell did with no weakness did you find out anything about those spots in your hands thank you
hello guys im 18 from London recently ive been in alot of stress having tmj with muscle twitching everywhere shortness of breath weird feeling random aches and i have palmar erythema no weakness or slurring speech do you guys think its serious
ShiftKicker
ShiftKicker
Hi nino-

Please make sure to read the forum posting rules. They can be found on the Read Before Posting link.
ShiftKicker
ShiftKicker
If you wish to ask questions, make sure to post only in your own thread in the Could This Be..? subforum only and not someone else's thread.
thx
hi b_farm_84 I'm Eugene and I just read your post..So your symptoms sounds similar to mine. Did you have a chance to find the root cause? Sorry for bothering you cn ignore it if you think so. Thank you!
Good morning! May 5,2021 i did EMG which was normal 10 days before the pain and tremor in the left knee has started and continues to this day but also exists in the right knee as well as the pain in the tibia, spines and ankies of the both feet. Also feel something stuck in the stomatofariga from February and I afraid because I read like that started the ALS.Thank you again
hi, i made a panel in finland and waiting for results. i can conclude something from it, until then... where did you make all these genes and what was a price? i am from croatia.
J
jethro
2. c9 - most important gene was not observed. it is complicated more than the others.
3. i think that all forms of als have gene mutations. most of them ("sporadic") are not inherited (guam als, poisoning etc). they are EPIgenetics.
J
jethro
J
jethro
trying to figure basic of the thing. german lab tests c9 and 2 genes more, it is 1200eur.
How are you doing? Your symptoms sound exactly like mine to a T. Neurologist and neuromuscular specialist say emg and clinical testing fine, but because they've seen my fasciculations in person they want to retest in August. Very stressful.
HockeyFan87
HockeyFan87
Doing ok saw another neuro and have a second EMG coming up. I want to get my face muscles tested but for whatever reason they gave me a upper and lower limb emg this time. I am going to try and get it done on my face/tongue, Yea it is very nerve racking for sure.
Hi Bergwijn,

You sound a lot like my dad. I was positive he had ALS, and at least so far, it does not look like he actually does.

He also has had a plethora of cervical spine issues and I was in fact able to get him in to see a neuro & get an EMG. They basically said they're sure it is his spine.

His twitching is also localized to bicep&tricep area too. Very similar!

Cheers
I
ItsTough
Whatever doubts you still have, I'm confident they'll be put to rest when you're able to go in for the EMG! I have BFS myself and even though I no longer have any worries about having ALS myself, my twitches BLOW up when I'm extra stressed or anxious.

I likely wouldn't even know what ALS was if I never googled "arm twitching" all those years ago! Cursed google. I bet your story is the same!
B
Bergwijn
Curse Google indeed. Wanted to let you know I got my EMG today and the results were good. He said the results were consistent with neck injury and not als. I feel a great weight off my shoulders. Thanks for your support and help in my difficult times.
I
ItsTough
I'm glad! I'm sure having the actual results feels 10x better than anything I said. Thats how anxiety goes I suppose :)


Hopefully they'll be able to treat your neck issues!
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