21anxious
New member
- Joined
- Dec 7, 2024
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- TO
My 1st thread: Thread
Hey again, I am 22 years old now, it seems like my fasciculations seem to be still consistent especially when laying down since the beginning of my symptoms (1st of September), they seem pretty "settled" in my calves, upper arms, and thighs, like almost constant throughout the day. I also still have fatigue in both of my upper arms, my right hand is from time to time feels also clumsy.
From time to time before going bed (when the twitching kicks the most) I open this forum to read if someone has a case like me and if it got worse over time,
I read not long ago that here: Thread that C5-C7 radiculopathy (Like I do in C6-C7) can be mistaken with ALS and of course my anxiety levels went sky high due to me seeing my self in that post with the right hand weakness and the constant fasciculations.
Should I go for another EMG just to see if those fasciculations means something beyond benign and too check that my radiculopathy is not mistaken with ALS?
I don't know why but it's just draining me mentally, they don't seem to stop I just want my life back, and my physical strength back, it doesn't seem to get any better especially as a 22 years old when I tell my parents about this they think I am crazy and they always like "we don't have it in the family so why would you have it" but my symptoms seem to not get better and with them being consistent it seems like I am back to the cycle of getting reassurance.
I was debating if I should post this in here because I am not here to seek mental support, I just want to always reassure my self that what is happening to me could be normal, but how is this normal if my fatigue/weakness and fasciculations does not seem to stop, the doctors appointment is in months from now for a checkup since the last visit, in the meantime I am here suffering on daily basis.
Questions:
1) If I had ALS would have it showed drastic progression since my first initial symptoms (6 months, 9 days ago.)
2) If I am still suffering after 6 months from the same symptoms is it worth to run another EMG back especially with that showing that cervical radiculopathy that I have could be mistaken/close to that disease?
3) Is there anything that I can do to make my current situation better in your opinion (other than the obvious mental side)
Thanks to @Igelb who helped me a ton privately a very good heart person, and also thank you for whoever bother to keep answering my threads, god bless!
Hey again, I am 22 years old now, it seems like my fasciculations seem to be still consistent especially when laying down since the beginning of my symptoms (1st of September), they seem pretty "settled" in my calves, upper arms, and thighs, like almost constant throughout the day. I also still have fatigue in both of my upper arms, my right hand is from time to time feels also clumsy.
From time to time before going bed (when the twitching kicks the most) I open this forum to read if someone has a case like me and if it got worse over time,
I read not long ago that here: Thread that C5-C7 radiculopathy (Like I do in C6-C7) can be mistaken with ALS and of course my anxiety levels went sky high due to me seeing my self in that post with the right hand weakness and the constant fasciculations.
Should I go for another EMG just to see if those fasciculations means something beyond benign and too check that my radiculopathy is not mistaken with ALS?
I don't know why but it's just draining me mentally, they don't seem to stop I just want my life back, and my physical strength back, it doesn't seem to get any better especially as a 22 years old when I tell my parents about this they think I am crazy and they always like "we don't have it in the family so why would you have it" but my symptoms seem to not get better and with them being consistent it seems like I am back to the cycle of getting reassurance.
I was debating if I should post this in here because I am not here to seek mental support, I just want to always reassure my self that what is happening to me could be normal, but how is this normal if my fatigue/weakness and fasciculations does not seem to stop, the doctors appointment is in months from now for a checkup since the last visit, in the meantime I am here suffering on daily basis.
Questions:
1) If I had ALS would have it showed drastic progression since my first initial symptoms (6 months, 9 days ago.)
2) If I am still suffering after 6 months from the same symptoms is it worth to run another EMG back especially with that showing that cervical radiculopathy that I have could be mistaken/close to that disease?
3) Is there anything that I can do to make my current situation better in your opinion (other than the obvious mental side)
Thanks to @Igelb who helped me a ton privately a very good heart person, and also thank you for whoever bother to keep answering my threads, god bless!
