ALSA chapters that are now independent

Status
Not open for further replies.

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
14,271
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Just a note that as of September, the following chapters are no longer ALSA members as part of a settlement, with Jan. 31 the deadline for complete disengagement. So you are seeing web sites in different states of existence.

Some now have "ALS United" in their names. Others have rebranded entirely, e.g., as "ALS Northwest."

The new spinouts do not have to kick up 13% of revenues to ALSA any more. If you write them a check, it will stay local.

Arizona
Golden West
Orange County
Rocky Mountain
Connecticut
Georgia
Greater Chicago
Nevada
New Mexico
Greater New York City
North Carolina
Central & Southern Ohio
Oregon and Southwest Washington
Greater Philadelphia
Rhode Island

The rest of the chapters, that agreed to "unification" (love where ALSA describes unification as transcending an "antiquated" status quo), are not chapters any more. ALSA now captures all the revenue up front. So be aware that if you write a check to "ALSA," it may or may not flow into any local activities.
 
Know that there are alternatives. I think CCALS is national but there are local support organizations Brigance brigade in MD ( and for patients of Houston methodist I believe) Joan Dancey in NJ. I am sure there are others
 
Status
Not open for further replies.
Back
Top