BlsdMama
Active member
- Joined
- Dec 5, 2016
- Messages
- 99
- Reason
- PALS
- Diagnosis
- 05/2017
- Country
- US
- State
- IA
- City
- Cedar Rapids
Info: My grandmother passed at age 80. Diagnosed with FTD at 77-78.
She had 11 kids. None are unhealthy.
I have a current dx of PLS. We're still waiting for the dirty EMG - I've had four so far. Three years into the first symptom (age 40) - drop foot first, then weakness, UMN signs, fasiculations noted on exam. Right leg first, then left involved, now right arm showing slight signs of weakness and hyperreflexia.
I wasn't concerned that it was familial. Grandma was the baby in her family. None of my aunts or uncles are unhealthy.
Mom has been saying for several months that Dad is losing his memory. Yes, he's been retelling stories, but... he also drinks a lot. But lately, he is REALLY losing his filter - more so than ever before and it wasn't all that great before.
Long story short, he completely blanked on an activity they'd done the night before. It was the strangest thing I've witnessed. He is 65 and one of the oldest in the family.
I'm thinking of asking for genetic testing. Am I just being anxious? I have not been overwhelmed by anxiety for a bit now so it's not just that. He will *not* go to the doctor, I promise. He despised watching his mom deteriorate and he won't face anything if he can help it.
I have eleven kids. I can't even fathom what this would mean.
She had 11 kids. None are unhealthy.
I have a current dx of PLS. We're still waiting for the dirty EMG - I've had four so far. Three years into the first symptom (age 40) - drop foot first, then weakness, UMN signs, fasiculations noted on exam. Right leg first, then left involved, now right arm showing slight signs of weakness and hyperreflexia.
I wasn't concerned that it was familial. Grandma was the baby in her family. None of my aunts or uncles are unhealthy.
Mom has been saying for several months that Dad is losing his memory. Yes, he's been retelling stories, but... he also drinks a lot. But lately, he is REALLY losing his filter - more so than ever before and it wasn't all that great before.
Long story short, he completely blanked on an activity they'd done the night before. It was the strangest thing I've witnessed. He is 65 and one of the oldest in the family.
I'm thinking of asking for genetic testing. Am I just being anxious? I have not been overwhelmed by anxiety for a bit now so it's not just that. He will *not* go to the doctor, I promise. He despised watching his mom deteriorate and he won't face anything if he can help it.
I have eleven kids. I can't even fathom what this would mean.