Hi everyone-
so I have some questions. My father was diagnosed in June with possible ALS (lower onset), but the neuro agreed with monitoring his progression that it would be useful to obtain a second higher opinion. So off we went to London, Ontario, and the chief researcher for ALS in Canada...
I have had nonstop twitching in the calf muscles of both legs for about 2-3 weeks, along with sporadic twitches elsewhere in my body--arms, throat, etc. Yesterday, out of curiosity, I stuck my tongue all the way out, and it seemed to be twitching pretty vigorously. I then tried resting it on my...
I was referred to Stanford at my request from what is conisdered a really good neuro. He didn't feel it was als, nor does the Neruo from stanford. He feels with all my tests I've had and the symptoms that ALS isn't even in the picture. He said that they can be 99.9% but never 100.
He feels...
I have read in a number of posts that twitching--fasciculation--is more likely to be a sign of ALS if it is "localized" rather than spread throughout the body. My question is this: how localized does it have to be to indicate possible ALS? For example--I have pretty much nonstop twitching in...
I'm wondering how many people with an ALS diagnosis had fasciculations before atrophy. I'm in the PLS/Possible ALS stage with clear upper motor neuron involvement & some lower motor neuron involvement seen in a biopsy.
I have widespread fasciculations that have developed & progressed in the...
Dear friends, once again I am in need of your advice. The bulbar symptoms have become increasingly problematic for me recently. To add to the tongue atrophy and what I perceive to be tongue fascics, I am now noticing obvious signs of slurred speech. Sometimes when I speak I feel “tongue-tied”...
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Hello everyone,
For the past 4 days i have had extreme neck stiffness, and yesterday i started to experience weakness in all of my limbs plus muscle twitching. Its almost like my muscles don't want to work sometimes? Also my jaw muscle feels stiff but, i can swallow just fine as far as i can...
I have some questions about ALS. I am 30 years old and started experiencing a strange tingly type feeling in my left arm about 1 month ago, particularly in my thumb. I have not particularly noticed any weakness, although I am now noticing my left arm seems to tire more easily especially with...
Hello,
First I would like to thank this web site I really have know one to talk to about my possible ALS, I do not want to put any more burden on my wife, in case I have ALS so much will fall upon her I am 46 with three kids age 18, 15 & 10. I guess I am just scared & worried about what the...
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Hi everyone
This is my first posting and I wanted to say hello to everyone and ask some advice to those who have been in the situation of not having a diagnosis for a long time, and if these symptoms sound like they may be ALS..
My face went numb last summer, and ever since, my lips and cheeks...