peg

I am new to the forums (see https://www.alsforums.com/forum/newly-diagnosed/27588-steve-s-introduction.html for a bit of an introduction). The doctors want me to start seriously considering a PEG. I have read many threads on this topic, but still have questions about how soon I should take the...

Very recently My lung function Dropped from 75 to 45 over three months , I had Another test 4 weeks later and is still around 45. So the doctors asked me whether I want a peg or niv. To be honest I really do not want a peg. My reasons are I suffer from anxiety and got panicked having a alarm On...

Anyone else experiencing lots of burping? I'm on a PEG tube and mostly don't have a problem but occasionally, I could have an entire day where I'm burping continuously and it's irritating! I don't know why this happens or if there's a way to stop it.

My husband's PEG tube is about 12" long, so we struggled to find a way to "stow" it between feedings without using tape. Eventually, I took out his dogtag chain from Navy days and asked him to put it on. Then I took an old clip style earring and attached it to the chain. Now, after feeding...

A nurse from the clinic came today and did my first real PEG tube change. The PEG came out about a month after I had it put in and it hurt like heck when she put a larger one in it's place. Now it's been about a year and I didn't feel a thing, most of you already know this but to the ones who...

I posted a long time ago about my dad. He does not have MND, they still think he has CIDP (although an outlier variant of it). There are some differences in his disease and ALS, but ultimately they look very similar. He is unable to move any part of his body, he is on a trilogy home vent 24/7...