My dad is 69yo and has had progressive coughing and swallowing problems for over a year. He has lost a great deal of weight - 20+ pounds. His symptoms have progressed to include slurred speech and poor breath support. His PCP kept treating him for a cold and thought that his history of severe...
als
back
brain
bulbar
cold
coughing
dad
diet
emg
fasciculations
info
mri
myasthenia gravis
neuromuscular disorder
new member
night
oxygen
problems
questions
reading
research
slurred speech
speech
support
swallowing
symptoms
tongue
treatment
vision
weakness
worried
My mom has advanced ALS and I have learned that things can always get worse. I am not my mom's primary caregiver, in fact I don't do that much hands on stuff with her because I have a 3-year-old and a 9-month-old. I feed her when I'm around, buy her foods and drinks she likes, take care of phone...
ability
als
back
bedpan
book
burning
camp
caregiver
caregivers
children
dad
death
euthanasia
eyes
falling
family
father
feeding
financial
friend
go away
heart
hospice
hoyer
kids
life
lift
medical
natural
night
oxygen
paralyzed
power
problem
respite
shower
student
suction
support
toileting
transfers
wanted
work
Just an update to let my friends know I am beginning to lose my voice. My arms are going fast. They are adding Oxygen to my Bi-pap now and I am scheduled to go on Hospice next week as far as I know. The body is apparently failing, but only God knows what the future holds.
I am sorry I have not...
Hello Everyone. I'm new to the group though I've been poking around here for quite awhile. I have become very close to a fellow graduate student who has ALS. Her family is not terribly supportive. I think partly because she wants to be independent, but I am very worried about her health and her...
One of my best friends is in really bad shape and I want to share with you her story...I just want opinions...I realize that you are not doctors or such...just want your opinion of what we should do next! With Missie gaining muscle strength (as you will read)....I am afraid it might be a...
als
angel
back
bed
breathing
clinic
cold
diagnosed
emg
feeding
feeding tube
fell
hope
life
memorial
misdiagnosis
muscle
muscle weakness
muscles
nurses
ohio
oxygen
pain
physical therapy
pneumonia
ramp
second opinion
story
surgery
symptoms
test
therapy
ventilator
weakness
work
Hi all,
Have been concerned on and off for years about the possiblity of ALS. Just had a sleep study and they said I do not have apnea. although I do snore but the doctor is concerned about a low oxygen saturation and said we need to find out why. Of course, I'm worried that this could mean...
Well, my mother's FVC is 35%. She is refusing to use the bi-pap and oxygen. The Clinic nurse advised us that hospice services can now be implemented. At what point do most people begin using bi-pap? I know she has a high threshold to pain but, goodness, I fear she is not going to be with us much...
Hi all, For the last 8 months I have had the following symptoms in order of appearance:
1) paresthesia in hands and feet (bilateral)
2) left face numb/tingly
3) Cold /tingly in various places of body
4) Foul taste in mouth (comes and goes) ... tingly/numb in mouth lips
5) Muscle weakness in...
Hello all, this is my first visit to this site, or any ALS/MND site, and I am hoping to glean some valuable information from experienced people here.
My Dad has MND, and has now reached the stage of using night time BiPAP ventilation. He had the fitting done earlier this week and had managed...
advice
age
als
back
battery
bipap
cpap
dad
diagnosed
disability
equipment
holiday
information
life
medical
medical equipment
mnd
night
oxygen
problem
questions
reading
test
My mother has been having some smothering spells at night. We spoke with the ALS clinic nurse and she set up a home vist from a respiratory therapy provider. They came yesterday and left a oxygen finger monitor machine to check her breathing throughout the night. Today, they came back to get the...