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Hi all, It's been a while since I've posted here. My wife is still progressing at an extremely slow rate and so far it's still only in her right leg as far as she can tell. A few weeks ago she said she couldn't be sure but a muscle in her left leg might be "missing" She did say it could be...

I was wondering what patients do before they get diagnosis. Isn't it hell? I mean there are so many other things that mimic ALS and it must cost a lot of money how do people get a diagnosis? I've spent my entire life savings and lost all my family and friends. I have nothing to live for these...

I just got four of these, and really like them I belong to a yahoo group (blenderized-diet) and a member posted about finding 120ml syringes. (the ones I've always used, and are standard issue are half that volume) The syringes are actually a gourmet food prep tool for "spherification", not...

My husband was recently diagnosed with ALS and I am finding it hard to believe this disease has been around for so long and yet there is still nothing that really helps it. Like cancer and many other diseases I do not believe with all the money, brilliant minds and years involved nothing has...

I am selling a virtually unused Dynavox V, Series 5, North American English Speaking, Speech Device. My daughter no longer uses it and I hope to pass this device on to someone who needs it. I am selling this device at a very large discount. The Dynavox comes with • Dynavox V Series 5 Console •...

I have been lurking on the forum for a few months, since his symptoms began in late July/early August 2012. He's had 3 EMGs since September 2012 and just the most recent one last week finally showed what we have suspected - bulbar onset ALS. I have already learned so much here but still feel at...

Help accelerate stem cell treatments by signing this White House petition.… See link at bottom Share on Facebook and social media. I believe we also need to start one to have the FDA allow ALS trials to proceed without a placebo arm… There are thousands of placebo arm data points already in...

For Sale: Lk NEW Phillips Respironics BiPAP AVAPS w/ Smartcard & Heated Humidifier This unit was purchased brand new, to replace an older model. Due to many ongoing complications, my grandmother went into the hospital before getting to use it for the third night. After 3 long weeks, it is no...

My mother was diagnosed with ALS. I do not believe she has ALS. Evidence that she has ALS Her speech is slurred. She drools and has trouble swallowing. She claims to laugh and cry uncontrollably, though this seems very subjective to me. A neurologist has diagnosed her with ALS. She has had...

I need some advice about antidepressants and I hope someone can help me. I haven't posted much because in addition to caring for my husband here in W.NY (who has slow progression ALS--5 years now) I have been long-distance caring for my very ill parents in Florida for two years now as well. In...