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  1. gbrown

    My Road Thru ALS--Long, But My Story

    My Road Thru ALS Gordon Brown August, 2001 Started experiencing falls. Had a few minor falls throughout the Fall of 01’. My legs felt like they were getting stiff. December 2001 Had my first serious fall just before Christmas. Got out of the car and tripped over my feet. Couldn’t...
    • gbrown
    • Thread
    • ability als balance bed bipap caregiver christmas cough assist cure diabetes diagnosed diagnosis early eating family fell finances financial foot fvc health hearing heart helpful hope life love medical mri neurologist paralyzed phlegm power power chair pressure problems progression pwc questions saliva shower shower chair social security sole caregiver speech speech therapy ssdi story supplements support swallowing tests therapy treatments trouble swallowing veterans voice walker wheelchair wrong
    • Replies: 6
    • Forum: General discussion about ALS/MND
  2. gbrown

    Latest Clinic Visit

    :pI had my latest ALS clinic visit last Wednesday, May 20th. All went well. My FVC was up to 46% from 40% in January. I guess all my breathing exercising is paying off. Miss North Carolina 2008, Amanda Watson, was there at the clinic. She talked everyone and had pictures taken. Her...
  3. gbrown

    Writing Pen

    For those of you who have trouble holding a regular pen, like I do, there is a pen called"PenAgain" by Pacific Writing Instruments. It has two prongs that you put your index finger in and it gives you the grip and stability to be able to write. I can't write without it and I work the...
  4. gbrown

    ALS Clinic Visit

    I went for my ALS Clinic visit on Wednesday 1/14/09. I have posted some pictures of my therapists on my profile if you would like to look at them. Unfortunately, I forgot to get a picture of Dr. Caress, my- Neuro. I will try to remember the next time. Gordon
  5. gbrown

    "IPLEX " Rally

    There is a group of PALS and CALS on the "ALSTDI" forum that have formed a group called "The IPLEX Team". The purpose of this team is to try and get our government leaders to influence INSMED, the company that makes the drug IPLEX to release it for use by PALS. Currently they cannot release it...
  6. gbrown

    New Photos

    I have posted some new photos in my album if anyone would like to look. There are some of the National D Day Memorial in Bedford, VA. These were taken just after it was opened in 00', there is much more now. If you are ever in our part of the country, it is well worth the time to visit. The...
  7. gbrown

    New Pictures

    I have uploaded a bunch of new photos in the "Albums" section of my profile. If you would like to see them click on "Gordon's Album" and enjoy. P.S.: If you let your cursor linger on each picture, you will see the caption explaining the picture. Will upload some more later, Gordon
  8. gbrown

    Possible New Treatment for ALS

    Yesterday in the news it told of a scientist being able to take human cells add the right DNA and make neuron cells for ALS patients. Google Dr. Douglas Melton from Harvard Univeisity. He discovered this by trying to find a cure for his son who is diabetic. He was able to take a cell from a...
  9. gbrown

    Als Dvd

    The ALS Accociation has a DVD named "Living With ALS". We were given a copy the first time we went to the ALS Clinic last July but in the hustle and bustle of things forgot about it. Last Sunday afternoon Mitzi found it and she and I watched it. It is the best explanation of all the symptoms...
  10. gbrown

    IPLEX Petition

    There is a petition which was started by the people on the ALS/TDI Forum to get the FDA and Congress to allow the drug IPLEX to be distributed to PALS. This drug was taken off of the market due to a law suit by a rival company that distributes another drug that is similar but does not help...
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