IPLEX Petition

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gbrown

Active member
Joined
Jun 13, 2008
Messages
77
Reason
PALS
Diagnosis
07/2006
Country
US
State
Virginia
City
Bassett
There is a petition which was started by the people on the ALS/TDI Forum to get the
FDA and Congress to allow the drug IPLEX to be distributed to PALS. This drug was taken off of the market due to a law suit by a rival company that distributes another drug that is similar but does not help ALS. The Italian government has started a study using IPLEX on ALS patients. No word on any results yet.

The petition is at www.thepetitionsite.com/petition/127840940. Please forward to everyone on your email list. PALS should have the optoion of any drugs that may help.

Thanks,
Gordon
 

Neph

New member
Joined
May 4, 2008
Messages
6
Reason
CALS
Country
Ger
State
NRW
City
Cologne
Hi everyone,
we, i.e. some of the people from the mailing list - have set up another petition, demanding immediate access to Iplex for all patients.

http://www.petitiononline.com/iplex/petition.html

Please support us and spend a minute to sign this petition. We fight for all PALS out there. Give them a voice and hope.
Take care
Claudia
 
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