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...I DO NOT have ALS. My neurologist said that since I have shown no spacticity and had no progression since my diagnosis, that I do not have ALS. He is still not totally convinced that I have MG though. He ordered one more antibody check. If that is negative, then I will have a blood test...

When I went to my new neurologist at the MDA Neuromuscular Center in OKC in June, he hinted that he thought I might have Myasthenia Gravis instead of ALS and put me on Mestinon, "Just to see what happens." I went back yesterday and he said that he loves it when doctors are wrong, especially...

Even though I am (hopefully) no where near quitting teaching, I have been looking into my benefits from the school district and found that I DO have district-paid long-term disability insurance through, I think, Met-Life. But I am not that fluent in insurance-ese and haven't contacted anyone...

I spent five days in Texas last week, three of them at the Neurological Institute at The Methodist Hospital seeing Dr. Stanley Appel and his team. On Wednesday, he officially diagnosed me with Bulbar ALS. He said that he is encouraged about my condition. Although my tests and symptoms were...

My neurologist told me Monday that he thinks that I have ALS, but cannot give an official diagnosis because it is not in three limbs yet. He has referred me to Dr. S.H. Appel at the Baylor College of Medicine in Houston. I know that he is the head of the neurology department at Baylor and on...

I have an appointment Monday morning (January 14) for an EMG. My symptoms are slurred speech, swallowing difficulties, foot drop, and physician-observed muscle weakness, bilateral, more prominent on the left side. I know needles are involved and it can be rather uncomfortable. Is there...

For those of you who have bulbar-onset ALS, what do the fasciculations feel like? I continuously feel a mild sensation like "Pop Rocks" all over my tongue, along with slurred speech, trouble swallowing and chewing, and foot drop.

I asked a question two weeks ago, but I never introduced myself when I joined. I am 43, a second-grade teacher, and a divorced mother of 3 (DD-15, DS-9 & 6). I started having slurred speech the last week of July. I had an MRI two weeks into it and it was normal. Then in October I started...

I have had difficulty with speech since the end of July. Sometimes it is moderately slurred like I've had a couple of drinks or a strong pain pill. The rest of the time it is mildly slurred, I feel like I now have a lisp. Then about six weeks ago I started having foot drops. I fell hard a...