- Nov 12, 2007
When I went to my new neurologist at the MDA Neuromuscular Center in OKC in June, he hinted that he thought I might have Myasthenia Gravis instead of ALS and put me on Mestinon, "Just to see what happens." I went back yesterday and he said that he loves it when doctors are wrong, especially about an ALS diagnosis. I have had no progression, in fact, my speech is almost normal and if I take the Mestinon, my energy is better than it has been in years. He told me he thinks it is MG (sero-negative), but that is still unofficial and he wants to see me again in six months. He said he is betting that I will live a long, healthy life.