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Hello my friends, It has been a month since my sweet man got his angel wings. A month that feels like yesterday and feels like eternity. I just want to send you all a huge hug today. and strength to do what you have to do. hugs from miles away. OX Cheryl

Hello all of my dear friends. I have been thinking of all of you over the past few weeks, meaning to pop on here and chat, but felt like I was not sure where I belong anymore. I guess this is it. It has been 18 days without my sweet man. Although it feels like a lifetime... I often have the...

Hello my dear friends who have been my sanity for the last year... On Thursday afternoon, my dear sweet husband passed away in his sleep. We had a great morning together. Had coffee together, showered him, he sat outside while I cut the grass. He wanted to have a nap about 2pm. I checked on...

Hello my friends... What a rough go we have been having. I don't even know where or how to start.... My husband is so not him anymore. He was such a loving, caring man who would do anything to protect and show me how much he loves me. How he is doing angry hurtful things and when I ask him...

Hello all my dear friends. What a week. What huge fights. So much frustration. So much stress. So the week started off well. We had a wheelchair delievered as his legs and balance are so bad. But surprise, surprise he refuses to get into it.. Still insists that he can walk down the stairs to...

My sweet man is getting so weak. He is just done. He wants it over. He has a DNR (Do not Recesitate) in place. He does not want a feeding tube, a vent or any measures that will prolong his life with this disease. On Tuesday, he was enjoying a beer when suddenly he spewed it everywhere and was...

Hi all.. Been thinking about you all here but have have no time to sit this week. Hubby is holding his own. Not happily but I FINALLY realized that his happiness is not my responibility. If he wants to only look at the negative and be angry for his last days there is nothing I can do about that...

My friends, Not sure if we are on the up swing or the down swing of this rollercoaster... We spent the last 3 days crying and him begging me to give him all of the meds we have in the house. He is done. But apparently his body is not. I am so emotionally exhausted. I am so angry that God would...

Hello my lovely ones who just 'get it'. It has been a rollercoaster. and I HATE rollercoasters. ALS rollercoasters especially. So my sweet man had an awful reaction to the morphine with the pump. I really thought that I was going to lose him last week. A psychotic episode which required a nurse...

Hi all My sweet man had an awful reaction to the morphine pump 2 nights ago. It was a psychotic episode and it really freaked him out. Since then, he is not talking, not eating, or drinking. The only words that come out of him are I'm done. We got a fentanyl patch to switch him to but so far he...