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  1. T

    When does it get easier

    Hi all, I and my dad (81) was my mom's caregiver. She passed away Feb. 14th. Though we knew she was going down we nor hospice knew it would be so soon. We knew 5 minutes before she was gone she was going. Anyway, it has been a month and I just cannot seem to find any this grief getting...
  2. T

    Keeping eyes open

    My mom is in final stages of ALS and I have noticed she seems to have trouble keeping eye lids up. Is this something that is common? I never thought about eyelids being affected.
  3. T

    What to do

    Greetings Caregivers, I need advice from someone who is or has experienced caring for someone bedridden. My mother is in what we believe is final stages of ALS. She is on bipap 24-7. She is on a feeding tube and is unable to speak. She can however write. She cannot walk but has been able...
    • The Sass
    • Thread
    • advice als bedridden bipap caregivers dad feeding feeding tube hospice hours night stages wheelchair
    • Replies: 5
    • Forum: Current caregivers
  4. T

    pay ranges

    I am in Texas and we are thinking about getting someone to sit with my mom a couple of days a week to help us out. My mom is on hospice but we just need that little extra help. Does anyone know what the per hour rate ranges?
  5. T

    When is Trach needed

    Can anyone tell me what level your FVAC is when the doctor usually recommends a trach?
  6. T

    Time

    Hello all, I hope to word this so it does not sound morbid but uncertainty and not knowing are tormenters to me. My Mom was diag. 7/06 with bulbar onset als. Besides having this she is on in years, 77. She got a peg 2/07 and can no longer eat, she has not spoken since 12/06 and can barely...
    • The Sass
    • Thread
    • als bipap bulbar bulbar onset clothing cough assist hope night onset peg problem walker wheelchair
    • Replies: 2
    • Forum: Current caregivers
  7. T

    Motorized wheelchair carriers

    Was wondering if anyone has a good way to transport their power wheelchair other than a handicapp van. With the chairs cost being so high we want some ideas of what you all have found to work.
  8. T

    Peg tube replacement

    Greetings, Could those of you with a peg feeding tube share your experience on how often you have had them replaced. Sass
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