Recent content by Flip4it

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    Tomorrow Is The Big Day

    I'm very anxious about my appointment tomorrow. I keep telling myself I'm mentally prepared but I'm not so sure about that. After a battery of tests, my NCV and EMG are tomorrow. My stomach is in knots but it will be a mental relief just to know one way or the other. With my overall physical...
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    It's Been A Long 11 Months

    Elaine, Thank you so much for your kind words. This is the first summer of my entire adult life that I haven't been able to play golf. I focused my energies on backyard wild life that I truly have enjoyed. I had hummingbirds everyday, there are deer that eat from the bird feeder, I saw my...
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    It's Been A Long 11 Months

    I am unable to lift my left foot so I've was prescribed forearm crutches. The problem is that my left hand is basically skin on bone and it is terribly painful to use them. I put moleskin on them but still (and I'm sure you understand) putting weight on skin over bone is painful. I ordered...
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    Diagnosed with Benign MND

    I think I would definitely get another opinion....especially after reading all these replies and it seems understandable that you are confused. There is slowing moving motor neuron disease but not benign motor neuron disease. You need to have this doctor clarify this for you because it isn't...
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    It's Been A Long 11 Months

    Thanks Elaine, I didn't mean I didn't want to be part of the forum in a rude way.....I just want this to be something other than ALS but my symptoms strongly suggest that this could be motor neuron disease and this is what the neurologist is investigating. I'm not jumping the gun until after...
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    It's Been A Long 11 Months

    I finally have a Neurologist that has immediately ordered an EMG and nerve conduction study. I was so impressed that FINALLY I have a doctor that put me in a hospital gown and examined me. He immediately saw the fasciculations in my legs, and he asked me if I was having them in my arms and...
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    Thanks for the Stickies :) I won't be on here again until AFTER October 9th. I didn't read the...

    Thanks for the Stickies :) I won't be on here again until AFTER October 9th. I didn't read the Stickies until after my rant.....sorry. In all honesty, I have been very sick for 11 months and not getting any better. I have a very frustrating story that I have no intentions of posting until...
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    Can the Doctors be wrong?

    They used the EMG as a diagnostic tool. The doctor must have been fairly certain because they don't give out a diagnosis without reasonable certainty. It is my understanding that there are slower moving forms of motor neuron disease but only time will tell. God Bless your friend.
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    Please if anyone can help me with their opinion

    I haven't been given an official diagnosis but a couple of things I'm wondering. Is there atrophy in all areas that you experience weakness? For example, your hand? Are you experiencing any muscle fasciculations? Also, did this start in one area and then move to the other areas? In my case...
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    It's Been A Long 11 Months

    I haven't been on here in a while but I am deeply saddened and extremely anxious awaiting an EMG and nerve conduction study scheduled on Oct. 9th. After a collection of apology letters from doctor's and 7 neurologists, we are at the point of not turning a blind eye to my condition. On Sept...
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    Progression

    I went to the Doctor in March 2011 also. I have been tossed around to doctors and still no diagnosis. Mine started in my left hand then arm then other side. Now in both legs. Left side affected worse. I have pretty severe atrophy in both arms and legs but still walking just very very weak...
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    Spinning My Wheels

    Well I feel as though I'm in a toilet bowl spinning around. I have been tossed around by so many doctors, it's ridiculous at this point. My complaints to the doctor went on for at least a year that something was wrong with my hands..."my hands are weak". That same doctor/primary care...
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    Hi

    Steve, I'm still in the "just hurry up and wait" stage but certainly if I get the dreaded news, I will want my son to be tested. I'm so sorry to hear that so many of your family members have been effected. My thoughts are with you.
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    Sad and Miserable

    Thanks. I don't know how to move it.....sorry a little challenged with the computer :)
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    Sad and Miserable

    Thank you all for your well wishes and advice. 4 months has seemed like an eternity....especially when you NEVER get better only worse every day. The unkown is so scary. I was really thinking MS in the beginning except there has been no remission in my symptoms for many months. So...
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