Recent content by DeansWife

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    Singing again

    How sad, another lost to this dreadful disease :-( May God give you peace and comfort.
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    My mom has been freed from ALS

    So sorry for your loss.
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    Ken McLeod has passed

    So sorry for your loss.
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    My Dad's Passing

    Thank you for sharing with us. You have expressed in your words what I could not say. Being a caregiver is a difficult task and I now try to reflect back to the time when my darling husband was not affected by this terrible disease. Sometimes it's easy, other times it's hard. I hope you can...
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    Hi, Sorry for your loss. I'm sure you are still hurting but hopefully beginning the healing...

    Hi, Sorry for your loss. I'm sure you are still hurting but hopefully beginning the healing process. Dean and I moved to Montgomery last Sept. so we are no longer in Fairhope. I'll continue to make Montgomery my home. I'm not sure where you live. What larger city are you close to? I am...
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    My mom has been freed from ALS

    Amy, I'm so sorry to read your post but on the other hand I rejoice with you that she is now whole again. My love was diagnosed one month earlier than your Mom and died Jan 12, 2013 - he was also Bulbar. My prayers are with you as you go through your grief as I can relate very well. I don't...
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    Mary, I just read your pm to me. Thank you. I'm staying off the forum for awhile until the...

    Mary, I just read your pm to me. Thank you. I'm staying off the forum for awhile until the ache subsides. Hugs and prayers, Janice
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    Just read your pm to me. Thank you. Hugs, Janice

    Just read your pm to me. Thank you. Hugs, Janice
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    Kim, thank you for your pm to me. I'm staying away from here for awhile until my heartache...

    Kim, thank you for your pm to me. I'm staying away from here for awhile until my heartache softens. It's just to painful to read a lot of the posts right now. Prayers for you. Janice
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    My Love, my life is now gone.

    I want to thank you all for your kind words of support. This forum certainly was a life saver for me many times when faced with dealing with the progression of ALS. You all came through for me in my time of want and need and for that I again thank you. I'm still in shock, it just wasn't...
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    My Love, my life is now gone.

    My PALS, Dean, passed this morning quietly in his sleep. He told me yesterday that he was ready to go, I told him I wasn't ready for him to go - he won. Love you always and forever Dean.
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    Christmas...and the decline...

    Dean is also bulbar. I to have not heard his voice in almost a year. It's very depressing for both of us. Dean has a pwc that he uses all the time. He needs help with bathing, shaving, dressing, getting in and out of bed and just about anything else. He still sips ice tea but most of it...
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    My mom has a secret

    I haven't read where anyone may have considered that she is not being abused at all, that it's in her head. My mother-in-law was living in a assisted living facility (with her husband) and claimed she was raped. She had demetia. We had her examined and there was absolutely no evidence that...
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    Two Lived End Simultaneously

    Sorry to hear of your loss. God be with you.
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    Breathing Issues

    We received the concentrator today. I'm aware that oxygen is not good for ALS patients and am working diligently at getting him seen by a pulmonologist. Having just moved to a new area, it's not as easy as writing it down here. I have called and called. I'm very frustrated with all the...
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