Hi Casa,
I don't see that anyone has welcomed you to the forums, so....welcome. I see your first post was a while back, so you've been here longer than me. Anyway, I just wanted to say 'hello'.
Reading your posts, I couldn't help but feel for you. It is hard enough when the kids are already grown, but having to deal with this disease, and continue raising your kids.....well, I know you have a heavy load.
Obviously you are a very strong person and you have all the support your family and this forum can give. As you have seen, there are others with children also facing this, so you are not alone. And, I see where you have offered them your support.
So I noticed that your song did not appear. If you go to the 'Al's sandbox' thread (off topic), and just send any of us (especially vickim) a visitor message, we'll tell you how to post from You Tube.
I wish you strength and comfort,
Hang Tough