Hi Billybob!
I don't know how the message meant for you from me I posted to Gregk's page. I'm can be a whack a doodle.
Timeline: my twin diagnosed on 8/26 @ Duke after being referred there by neurologist, Dr Radoff in Knoxville. Va referred him Radoff after a couple of years of failure to dx. 9/18, full MRI ordered by Radoff.
9/25, PVA did intent to file. Week later, Radoff confirmed Dukes dx.
PVA gave my brother a VA ALS questionnaire for Radoff. Completed and submitted w/ claim. Brother called PVA, said they hadn't heard anything. Same afternoon PVA calls to say he's approved?
Couple of days ago called VA 1 800# after getting locked out of site for failure to complete w/in 2 min. time frame. Just for the hell of it asked about his claim ($) and was told that his 1st check was scheduled for direct deposit into his account on 11/1.
Let me know what's going on with you and if you need help.
Tina