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M
I started experiencing the same symptoms after using the antipsychotic called clopixol and I am very scared. How are you now?
lgelb
lgelb
This user last logged on in 2019.
A
Bro İnstagram adresini versene oradan görüşelim
R
RAY21
moderatör izin vermiyor bağlantı yollamama ozantosun yazarsan çıkar
A
Aytac12334
aytacdurus da benim hesap birine takip attım ama inşallah sensindir
R
Hello Aytaç, I'm sorry you're here. I'm in Türkiye too. We're experiencing similar symptoms. I hope you're well.
A
Aytac12334
Hi Ray, I was hospitalized for three days and have seen five different neurologists so far. They all claim it’s something like a cervical or lumbar hernia, but definitely not ALS. At this point, I feel like I have to believe them. I have an MRI scheduled for July 20th, and until then, I’m going to assume I’m okay and just go ahead with the MRI. We’ll see what happens after that.
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J
It's been a while, do you have any update? I have some similar symptoms to you. especially jaw/teeth chatter things
J
Hi, I was wondering how your EMG went. I too have been having pre cramp feelings in hands and feet, as well as all over muscle twitching. I am hoping you got good news
S
Hi - read your thread and I too have been struggling for 4 years with some similar symptoms.
- atrophy on outer right ankle and pain when I walk.
- pain on inside of right elbow after I Iift heavy
- muscles getting tired sooner but I can still lift weights and push up
- pain in jaw muscles and excess saliva

Nothing wrong in EMG. frustrated Nobody
Believes me because tests don’t show anything. 46 yr old
C
I have very similar symptoms, and similar age group as well.

-Twitching for 7 years
-SOB for 5 years, 24/7 smothering feeling
- mri xray blood tests normal

Did you figure out anything new recently?
C
Hi Rosebud. I have read your posts and believe I have a similar pattern of symptoms.

My symptoms started 7 years ago with, and SOB for 5 years. It’s gotten progressively worse to the point where talking in meetings leaves me SOB.

Last EMG was five years ago but normal, I’m going for another soon.

Please do keep us posted with any updates. all the best
D
Hi friend. I have all your symptoms and still progressing. If you wanna chat about that you can find me on Reddit. I'm also Lyme positive and 2 years from symptom onset.
Supatom75
Researching for my mother, recently Dx with ALS
lgelb
lgelb
Feel free to post any questions or concerns in the Current Caregivers or General Discussion forums.
G
Hey. Just wanted to say hang in there. I don't know specifically what you have (or what I have) but I do agree I don't think its ALS just based off the emg. I am awaiting one to check a neuro myself. I don't know about for you, but the best thing for me is to simply have someone to talk to and vent out the energy that has built up due to the concern of the health. If you need to reach outt and vent let me know.
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G
greatsharkbite
My main symptoms were stiffness, brain fog, muscle weakness, fatigue, body moving on its own when tired and random pain. I no longer think its als because the stiffness, just became pain and I heard ALS can present as just stiffness/weakness but no pain.
J
Jessie10
I am glad u no longer have to worry about ALS. I unfortunately have something new it seems ever week that makes me think in ALS. Totally sucks
G
greatsharkbite
The limbo is the worst part. I'm still worried myself. I had symptoms that were insane. Body moving by itself if I felt tired, incredibly brain fog, vision changes, inability to sleep. So I do get it. My symptoms started march and appeared every couple of weeks or so. I am hoping you get better. The worrying sucks.
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