Interview request Maastricht University

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AnnaW

New member
Joined
Sep 14, 2021
Messages
1
Reason
Learn about ALS
Diagnosis
00/0000
Country
NL
City
Maastricht
Hi everybody,
As a part of my master's in biomedical sciences at Maastricht University, I am currently working on a group project on ALS. For this project, we are looking to interview a patient, to give us more insight into the challenges faced in daily life/ diagnosis/ treatment of this disease. I was hoping one of you would like to talk with us about this. We will treat you with respect, and you only have to answer questions you feel comfortable answering. This interview can be conducted via phone/video call and should not take longer than 30 minutes. Alternatively, we can also pose our questions via email. We would be very happy and grateful if any of you could make some time in the coming two weeks.

Thank you in advance

Kind regards,
Anna, Mats and Paula
 

jud

New member
Joined
Sep 1, 2021
Messages
4
Reason
PALS
Diagnosis
03/2020
Country
NL
Hallo, i am living 35km from Maastricht and have now 18 months ALS. If you are interested we can talk.

Jud.
 

rnewton60

Active member
Joined
Mar 1, 2021
Messages
32
Reason
PALS
Diagnosis
11/2019
Country
US
State
CA
City
Fremont
I have had Bulbar onset ALS.for 2 years now and happy to email.with you, can't speak or eat by mouth anymore. <email removed, sent to AnnaW>
 
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dskeeler

New member
Joined
May 9, 2021
Messages
2
Reason
PALS
Diagnosis
03/2021
Country
US
State
OH
City
Rawson
I was diagnosed with ALS 6 months ago. I've shown symptoms since last year. Speech is difficult email would be best.
<email removed, sent to AnnaW>
 
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SlithyToves

New member
Joined
Sep 5, 2021
Messages
7
Reason
PALS
Diagnosis
04/2020
Country
US
State
GA
I have bulbar ALS. I can still walk. I was diagnosed in April of 2020. I'd like to I intervwed. My wife would interprete for me. Lol
 
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