speech

  1. M

    my dad was diagnosed on 3/2017

    Hi everyone, I have been reading the forum for quite a few months now trying to gather as much information on ALS as I can. My dad was diagnosed with ALS on 3/2017, they never stated if it was Bulbar or Limb-onset, but it all started with slurred speech at the beginning of DEC 2016, so we...
    • Mydad
    • Thread
    • 2nd opinion als arm bipap bulbar caregiver choking clinic dad family fingers food heart kids lung capacity mad night onset peg progression slurred speech speech suction symptoms wanted
    • Replies: 5
    • Forum: Newly diagnosed
  2. K

    Help on sourcing Neudexta

    Hi All, My dad has been diagnosed with ALS and currently his speech and swallowing ability is severely impaired. I saw some news on Neudexta providing some bulbar symptoms improvements and was hoping to try it for my Dad who is living in India (I am in UK). I am struggling to find a way to...
  3. G

    How does Bulbar progress?

    HI, I'm new to the forum. What is the progression for Bulbar ALS? It seems that progression can vary greatly - slow for some and fast for others. But, if it starts with the loss of speech, would it progress downwards (arms to legs)? Or, can a person with Bulbar onset start with loss of...
    • gigi1
    • Thread
    • als als? atrophy bulbar bulbar als bulbar onset clinic diagnosis emg fasciculations genetic lyme mri onset progression speech testing tongue
    • Replies: 3
    • Forum: Could this be ALS?
  4. M

    Travel suggestions

    My husband wants to take our teens and I on a big trip this summer. He's wanting to travel out of the country. I don't even know where to start with this. This will be our last big adventure. He is wheelchair bound, ventilator dependent, feeding tube, no speech. He's put out Australia, Egypt...
    • missyg75
    • Thread
    • advice age feeding feeding tube questions speech travel trip ventilator wheelchair
    • Replies: 2
    • Forum: Current caregivers
  5. C

    Exhaustion

    I have been diagnosed since August of last year. Currently my arms are totally impaired. I can still use my fingers. EMG shows active deterioration in my neck, upper back, upper chest. I am having bowel slowdown. My legs, breathing, and speech are fine for now. I read on various forums about...
  6. M

    Grateful for any help-Bulbar?

    Thank you for any advice. My mom was just diagnosed w Bulbar onset. I am planning to be her caregiver, and also have 3 children. I am 46. In taking her to spots i noticed that some of the symptoms she has I actually have too, and have been ignoring. What ate the chances right? Specifically, I...
    • Momofthree
    • Thread
    • advice bulbar bulbar onset caregiver children diagnosed muscle muscle weakness onset planning speech swallow symptoms tongue weakness
    • Replies: 5
    • Forum: Could this be ALS?
  7. E

    Wife has "likelihood of ALS" diagnosis

    I want to start by saying what a great group this is for someone like us. I have been reading these boards for awhile and find it remarkable how knowledgeable and caring the users are. For that I thank you. This is my first time posting, and I tend to get a little long winded at times, so...
    • Evenrude
    • Thread
    • age als arm autoimmune back cure diagnosis early emg fasciculations hope mnd muscle neurologist pain pressure scleroderma speech story symptoms tests vent wanted weakness wife wrong
    • Replies: 7
    • Forum: Newly diagnosed
  8. J

    Concerned with several matching symptoms of ALS (Have read sticky)

    Hi all, firstly I have read the sticky in this section, but I just have a few brief questions. I'd like to thank anyone who takes the time to read this in advance, as I'm letting these concerns get the better of me. I'm a 22 year old male, living in Ireland. In the past summer I lived abroad...
    • john67
    • Thread
    • als als symptoms anxiety back concerned decline eating feeling weak hope ice neurologist problems questions reading saliva shaking slurred speech speech symptoms symptoms of als twitch vent weakness
    • Replies: 2
    • Forum: Could this be ALS?
  9. S

    Phlegm issues

    Hi friends! My mom was diagnosed in Feb/17 and seems to have bulbar onset although the doctors haven't said. Her first symptom was hand weakness and now she has slurred speech, decreased FVC and just recently issues with swallowing. We live in Canada and are getting the generic version of...
    • Sroccia
    • Thread
    • advice bulbar bulbar onset canada choking cough assist diagnosed drugs fvc helpful hope issues life nuedexta onset phlegm possible a problem progression quality of life slow progression slurred speech speech swallowing symptom weakness
    • Replies: 9
    • Forum: General discussion about ALS/MND
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