night

  1. JohnnyMags

    Night Out

    Well I got my wife to go out tonight but it wasn't easy. I can't believe how much she is against going out. One of her fears is going to the bathroom and/or having an accident before she can get to the rest room. The other fear is getting up off a low toilet (we have high toilets in all our...
  2. JAM

    Night bathroom concerns

    My PAL’s is fine during the day to use toilet, he can still walk short distance & stand at toilet with bar. At night he currently uses a portable urinal. I think standing in middle of night to use it, even though it is right next to bed, is getting dangerous for fall. He’s groggy etc when he’s...
  3. M

    Rushed ALS Diagnosis ??

    First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...
    • Motyl
    • Thread
    • 2nd opinion als brain death diagnosis dying emg family family history family member father heart lead mri muscle neurologist night stress stroke support symptoms test twitches wanted weakness
    • Replies: 5
    • Forum: Could this be ALS?
  4. R

    Breathing Problem

    My wife sometimes at night or day depends on the position of complaining about breathing problems, always helps open the window, today I arranged for a oxygen concentrator. We don't know anout any result becouse she has stared use from 30min. Are there any other methods to improve breathing? I...
    • rafiksq
    • Thread
    • breathing breathing problems crying night nose oxygen please help please help me problem problems respiratory
    • Replies: 14
    • Forum: Tips, tricks, and gadgets
  5. D

    calf weakness, twitching and hand symptoms

    Hi everyone. I've been having a lot of muscle twitches mostly in my calf areas and thighs but all over as well. Also my left calf feels weaker than my right even though I can still walk around on my tip toes and heels on both feet. Another thing I noticed is that it is difficult to straighten...
    • Dougfunny
    • Thread
    • crying fingers flexing muscle muscle twitches night reading stupid symptom symptoms test thumb twitches twitching weakness
    • Replies: 13
    • Forum: Could this be ALS?
  6. J

    Matress trouble

    My husband shoulders are pretty much just bone now. He is side sleeper and is experiencing a lot of pain from laying that way. Is there anything we can try to protect his shoulder so he can still sleep on his side? We have tried wedges and that is so hard to get him in comfortable position...
  7. A

    Terrified of bulbar

    First I would like to thank everyone in this community that is being very supportive because I know your time is very valuable. I am a 25 year old male. It has been an ongoing battle with my mind for the past five years because ever since I turned 20 I would have twitches all over my body...
    • angelo medrano
    • Thread
    • back bulbar cold feeling weak ice night reading shaking sleep swelling symptoms tongue twitches twitching voice weakness website wrong
    • Replies: 3
    • Forum: Could this be ALS?
  8. Ande

    Frightened that I have ALS

    I know I'm 17 years old and it's very rare for me to have ALS on this age, but I still hope you hear me out on this. This all started with muscle twitching about 4 weeks ago. I felt it in my legs and in my back which was really weird feeling. I also noticed that when I was standing still my...
    • Ande
    • Thread
    • age als arm back brain death food hope hyperreflexia lift muscle muscle twitching music night scared shaking sleep slurred speech speech stress symptoms twitches twitching wanted wrong
    • Replies: 11
    • Forum: Could this be ALS?
  9. Kristina1

    having to cough up secretions after lying down

    Lately I have to cough up secretions after laying down with the bipap all night. I am not sick and do not believe im getting sick. Is this because the bipap prevents normal clearing of secretions you might do in your sleep (throat clearing or grunting?). Basically im wondering if bipap is...
  10. I

    Very Fast Progression

    I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
    • Idaho2790
    • Thread
    • ability bulbar bulbar onset diagnosed foot life night onset pain pbp peg progression vision vomiting walker work
    • Replies: 0
    • Forum: People with ALS (PALS)
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