ice

We went to clinic today and heard positive things. Doctor said Brian will walk for a long time. A long time in ALS terms no doubt but still good news. Progression almost non existent from last time. Progression overall slow average and not likely to get fast. Good and more good. We got hooked...

People often ask how my wife, Darcey is doing... and I'll typically answer "She's holding her own pretty well!" I honestly don't mean to be "put offish" with that answer... its just difficult to describe where she's at in her ALS journey or how exactly we work together each day to "keep...