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  1. W

    Super extremely rare

    Hello, I’m a 16 year old Caucasian male. I play tennis pretty much every day for three hours usually. For the past couple of months I have had non stop twitching everywhere from tounge to my legs. I went to my doctor about this issue and she’s ran weakness tests and took blood work and she said...
  2. A

    Symptoms concerns

    I have a long story and I have read the stickies. I appreciate the information. This will be my only post. I just want your advice and expertise. A year ago I woke up with my face numb all over but primarily my right side. I went to ER and checked for stroke. I was not having a stroke. I was...
  3. P

    Scared 38 y/o Father

    I’m 38, married with 3 young children, and I’m scared to the point of falling apart. I will keep the story as brief as possible. This year has been the most stressful of my life. We almost lost my youngest at the beginning of the year and she was in the hospital for weeks. We had major financial...
  4. D

    ALS concerns after 5 weeks of symptoms

    Hi everyone, I'm a 31yo male, relatively healthy. For the past 5 weeks I have been experiencing concerning symptoms, leading me to believe I have ALS (or another neurological condition). It started about 5 weeks ago when I woke up and it felt like my arms and legs were 'wet noodles'. That...
  5. N

    Internal stabbing pain

    This may be a long shot but has any with ALS ever experienced a sharp stabbing pain to the rib cage area when taking a deep breath or coughing, laughing, etc. I have felt this pain in my shoulder, my lower back and on both sides of my body. This has been going on for months. It used to only be...
  6. F

    Dysphagia for a month and a half

    Hi all, I want to thank anyone in advance who can shed some light on my situation. I’m a 25 year old male with no existing health conditions. Starting about 6 months ago, I’d occassionally have a period of 5-10 minutes where I’d feel like I was unable to breathe well. This would happen...
  7. P

    Portable O2

    Hi, I am looking for a portable O2 machine, sick of changing the portable bottles, and packing 10 of them in the car if we go away anywhere, and lugging the oxygenator around is hard when it's just me and my PALS. Got quoted $2500 for new and around $900 for used. Just wondered if anyone had one...
  8. Erika

    More changes as the end gets closer :(

    My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...
  9. P

    Coping, Just about.

    Hi, I am new to this forum. My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
  10. S

    At A Loss

    Hello everyone I'd like to start off and say I don't think I have ALS (anymore) I know that I have severe (health) anxiety, OCD, and depression. I started out like so many other people who got BFS and was worried about the twitching all over the place. This was about a year ago that I first...
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