fear

  1. C

    Anticipatory Grief and Death with Dignity

    Anticipatory grief is a real thing, yet there are no support groups for it. I have asked at a couple Hospices and their grief support groups are only for after the passing. Quickly, my mom is the one with ALS. Bulbar onset so she is still mobile, some difficulty swallowing but basically...
    • csabados
    • Thread
    • als angry back bed bulbar bulbar onset conversation death diagnosis fear friend frustrated grief helpful onset pain planning progression slow progression speech support swallowing ventilator venting wanted
    • Replies: 21
    • Forum: Current caregivers
  2. S

    trying to stay calm

    So it has been a crazy 5 weeks. Weeks 1 and 2: I initially noticed my left pinky twitching softly driving home from work. An occasional flutter happens from time to time so I thought nothing of it. It happened for a few days in a row. Again, not much worry as from time to time it would...
    • Serenitynow
    • Thread
    • anxiety arm back balance burning caffeine diagnosed driving emg fear flu life love muscle muscle weakness muscles night oxygen problem scared sleep supplement test twitches twitching weakness work worried worry
    • Replies: 3
    • Forum: Could this be ALS?
  3. anderkling

    The Blessing of Scripture

    As a PALS, on this difficult road, facing "the valley of the shadow of death" I have been drawn to "feasting" my heart and soul on the comforting, encouraging words of Scripture as perhaps never before. No longer able to work, I have time for deeper prayer, and what a joy it is! This word from...
    • anderkling
    • Thread
    • christian death eyes fear heart life lifts running work
    • Replies: 66
    • Forum: Religion
  4. maryhahnward

    Dis-spelling the 5 Stages of Grief

    The 5 Stages of Grief and Other Lies That Don't Help Anyone The stages of grief were developed by Elisabeth Kubler-Ross over 30 years ago, as she listened to and observed people living with terminal diagnoses. Since the publication of her book On Death and Dying, the "stages of grief," as they...
    • maryhahnward
    • Thread
    • anger back book clinical death depression dying fear free grief guilt heart hospice ideas last days life love natural progression psychology stages support work wrong
    • Replies: 30
    • Forum: Past caregivers
  5. P

    A new poem

    Revealed How can people listen when your voice is silent. How can you see when you turn a blind eye. How can you feel without touching. How can you live in a world devoid of empathy. We see it everyday. We bear witness in a world being torn apart. To see human rights come under attack. To see...
  6. S

    Worried and wondering

    Hello, I had a bout of twitching in my 20's that lasted 1 year and things have been fine for the past 15 years. now I am 41 and had some twitching in my right shoulder one evening while watching TV. The next day I had twitching everywhere - no doubt anxiety played a role in this. Within 2 days...
    • Sean73
    • Thread
    • advice als anxiety driving fear finger muscle neurologist pain shoulder stress twitching worried
    • Replies: 3
    • Forum: Could this be ALS?
  7. A

    Another one worried about ALS. Incite?

    Like so many others, I have found myself on this forum out of fear over the few symptoms I'm having and their potential relation to ALS. I haven't gone to the doctor yet. I've been waiting for my insurance to kick in from work to see a doctor and should be getting it this week and plan on going...
    • Ampersand815
    • Thread
    • afterward als arm constipation diagnosis fear feeling weak fingers insurance life love muscle muscle twitching pressure shaking sporadic stress stupid symptoms twitching work worried worried about als
    • Replies: 8
    • Forum: Could this be ALS?
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