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ctollar, Please accept my sincere condolences. I lost my dad to ALS 9 years ago last October and the pain was all-consuming. Although it has eased quite a bit - it feels much more removed now - the shape of my heart has been permanently changed. I don't look at the world, or people, the same...

Hi, Victoria. I'm very sorry for your loss. It's so hard. Even though I haven't posted on this forum in years, somehow this is the one username and password I always remember. My dad also died of ALS (tentatively diagnosed) 4 & 1/2 years ago and I'm still not over it. I have a lot of...

Hello, I'm so sorry to hear your sad story. My dad passed away,probably from als 3 years ago. I was there, but still worry about the end...left at the wrong time, etc. etc. And all I can say is don't do that to yourself. You're doing your best. Wishing you all peace. Debbie

rm, your post also brought tears to my eyes. I lost my Dad to this disease over 2 years ago, and of course, it was one of the most intense experiences of my life. Why am I here? Just to be reminded, I guess, of the strength, resourcefulness, and humor of people with ALS/MND....God, I miss my...

I was only on the forum for a few months back in 2008, when my dad died from als, but I thought I'd come back here for old times' sake and the first person I wanted to check up on was Beth. What an impression she made, as so many have said, of kindness, generosity and humor.....I'm so sorry.

Yeah, I'm glad to hear a positive Babinski doesn't necessarily mean ALS (thanks, planningguy), though I'm still worried. I've had 2 MRIs of my lower spine in the past 2 weeks, the results of which I haven't discussed yet with my own doctor. I also had one of my brain over 3 years ago, and...

Hello out there, I'm a little worried because I read on a neurologist's old report that I have the Babinski Sign. From looking online, it sounds like a definite symptom, but you never know. It seems the people here sometimes know more. Anyone have any advice?

I've been there, too Lilscorpion, I'm so sorry you have to go through this with your dad. My dad, Frank, died in October of ALS and it was the hardest thing I've ever been through. The details don't really matter, but suffice it to say that I'm still enraged on his behalf (at both the...

Mndireland, I really feel for you. It's been almost 4 months since my dad passed, and I was with him almost round the clock. He was so ready to go by then, although 6 months earlier he would have been the last person to want to go. He was not religious and I'm not either, (although I keep...

Gigi, I look back on this same period of time with my dad (and mom) with such a feeling of unreality. I also wish I could help you. But I think you've done the best thing you could do simply by coming home to be with her. These moments are so sad, but precious. Debbie