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No, not June, I am being followed yearly he said until he sees something that would necessitate more frequent screening. I am waiting for an appointment in September. I was supposed to have an open biopsy on my bicep but I have not heard anything about that yet either.

Question on PFT. Could I get some input on the results of my MIP and MEP testing please: Baseline Spirometry is within normal limits. There is a significant decrease in flow rates in the supine position suggesting decreased muscle strength. The Maximal Inspiratory pressure is within normal...

Will do thank you. :)

Thanks Nikki. I guess you're right, he may want to see how much I've progressed or maybe he wants to do the NCV and EMG again before he decides? Maybe something will pop out at him during them.. The banana is a problem, very tricky but right now I'm more worried about my balance an weakness...

Oh I see. Well I will certainly ask on Monday. It's already a long process to figure this out so why delay what can be done. Thanks for the tip. I though of something else I can't do...open a banana without cutting it with a knife. Sounds weird doesn't it.

Thanks for your reply Nikki. I am in a small city and my Specialist is 4 hours away. He said that he hopes Covid-19 has settled down by then so that I can go in and get the bloodwork done and a repeat EMG and NCV. Thanks for your suggestion, I am going to call on Monday and see if I can have...

Im sorry If I wasn't clear about what I was asking, this is difficult to describe.... and thanks for any replies. Did anyone in the process of diagnosis of ALS have a differential diagnosis of CMT disease? It doesn't fit exactly with what I am experiencing. I can no longer open some ziploc...

Hello, I have been progressing with weakness and atrophy in my feet legs, hands, shoulders and most likely deltoids... I had a muscle biopsy in March of the vastus Lateralis that showed a Myopathy with type 2 atrophy and a necrotic muscle fibre. My emg showed the same Chronic neurogenic change...

Ok, good advice, ....my family Dr. said he doesn't know what to do after he saw the atrophy. I think that thee blood work has been done for the most part. HIV, Lyme, West Nile, ANA, Lupus, Diabetes. Isaacs...there's so many that were done, The only thing I didn't have checked was for heavy...

Ok thank you. I mentioned in a past post, I am 54, have a provisional diagnosis of Cramp FS. Since that diagnosis, I've seen my family Dr. who stated I have muscle atrophy in my right calf and right thigh. I told him I am losing my footing and stumbling a lot more now, I am also grabbing things...