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Hi everyone. My sister is in her last days. Hospice started last Friday. She is now off her bipap. Her pulse today is 47. Did anyone have signs on how much longer we have with her? It's so frustrating that I can't seem to do anything for her anymore. Any advice would be great! Thank you.

My mom got the idea to give Jenn Pedialyte for her dehydration. Does anyone see anything wrong with this? We are waiting for doctor to get back to us but we don't know when that will be. Thank you!

So we are being told that since my sister is on a bipap machine that medicare will not pay for hospice. Some say that they will take her but eventually she will have to come off of it since its "prolonging her life". My question is for the CALS that have gotten hospice. What all do they do for...

I just wanted to post what we went through yesterday in case anyone has this issue so you know what we did and hope that it might help someone else. This is not something I ever thought would be a problem with ALS. Last night my sister was in distress and we couldn't figure out was wrong, now...

So my sister has not slept since Wednesday. I am concerned cause everything that we have tried is not working. With all her meds she takes every day and she gets Benadryl, morphine, melatonin, on and on - Xanax! She used to sleep like 20 hours a day and now she is not sleeping at all. Has anyone...

Hi - My name is Michelle and my sister was diagnosed with ALS April 2015. She seems to have got it pretty bad and drawn out. At first it was just her tripping a lot, then she would just fall and couldn't get up, couldn't get off the toilet or out of bed without help. As it got worst and worst...

My sister was diagnosed with ALS 4/2015. She is at the end and I need to know the signs and what to look for. I need to know how much more time I have left with her. She is currently on a bipap machine, she cannot breath on her own anymore. That has been since August 2017. Monday her chest was...