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Forgive typing good hand isnt cooperating theze days. I I just arrived at the Minneapolis VA got my pic line installed and I will begin my first infusion’s tomorrow. Will update more after it starts. Pretty excited. Hopefully it has a positive impact. i am first at this hospital to receive...

During my visit with my VA dr. yesterday we spoke about this at length. She stated that she would be extremely suprised and disappointed if this were not made available through the VA system as soon as it is available. She stated that the VA wants to be considered a forerunner on the treatment...

Don't check in as often as i should, but i am still doing ok. Just got back from another 3 month evaluation today. Respiratory still above normal, and did swallow fluoroscopy which went well. They said i have some slowness and twitching in my tongue but that was all. legs are still progressing...

Today marks the 1 year anniversary of my diagnosis, definitely not a feeling of celebration. I am posting this because of all the support I was given by the community here during that troubled time, and I am eternally grateful and forever in your debt. I do find myself consciously avoiding...

Understandable swalker, i already have the wheelchair van so that will not be an issue. And I do have a manual chair for emergency use. But the only use that has gotten was a trip to the zoo with the kids, the VA has offered a PWC if I wanted it now but the renovations on house havent even...

Sigh, guess I was just kinda hoping that it wasn't a progression. I appreciate everyones concerns, luckily I am not at the point yet that I will concede to a chair. I take smaller steps now, more like a shuffle and that seems to be working ok for now.

Had to google rollator haha, docs told me that wont be an option for me since one arm is unusable. So for now the cane is staying until absolutely have to go into the chair... sigh that dreaded chair.

Hello all been quite a while since I posted, been a really rough year, but I have a question if I may... Those that have lost use in your legs, can the leg muscles deteriorate before having drop foot? I ask because I am having harder time walking these days, and have to use a cane. But I have...

I have been working with a pva rep, and he has been great for helping with claims and such. But he has not been able to help with any of the applications for things like DVI, CHAMPVA, SAH, vehicle grant etc. Maybe mine just isn't well versed in those things, but we have had to do most of our...

One comment that I would like to submit is it would be really nice to have someone at the care facilities that could help get paperwork filed for all the different programs that are available to ALS patients. I am sure many can agree that during the turmoil of getting the news that we have this...