Saw your "one year in" thread and figured the PALS would be giving the most useful responses. My husband has ALS, so even though I'm just a CALS, what you said made perfect sense. No rules about "appropriate" way to respond to such a crappy diagnosis, everyone has to find their own way of dealing with it. I just want to say I'm so sorry and I hope you'll come visit and share with us whenever you feel like it. "Pacing" yourself as you are sounds wise. Whether you show up here often or rarely, you've got a community here. Hope it helps in some way. The best to you as you deal with it.