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I had mine on June 6th and scheduled for a second mid October. I was okay waiting but my symptoms are worsening, including breathing. I know a month may not seem like a lot but boy have I progressed in a month. I'm wondering if I should bump it up. How long did you go between EMGs?

Just reaching out. I'm waiting for my final MRI then second emg in October. Emotionally, I'm not doing so well. Like I told my husband, I could handle the weakness if I knew it would improve but since it keeps getting worse and slowly moving to other spots, I cannot mentally handle it. I'm just...

I've now completed all blood tests. The only thing it showed was slightly elevated ACE. The rest was all normal. Darn :( MRI was fine. Second EMG scheduled for October. So the spinal tap would be the last test in the arsenal, right?

I apologize because I don't know where to put this question. I am currently without a diagnosis but have clinical weakness. I asked my gp for anxiety medication because I am really stressed about what's happening to my body. She prescribed Ativan. I took it and my weakness has gotten so much...

While I do not have a diagnosis yet, I am having real issues with swallowing and weak neck muscles. I don't have much slurred speech but I have raspy voice and quiet. But the terrible feeling of tight throat and soreness/weakness stinks and scares me. I'm drinking less and eating less because...

I am still in the process of diagnosed, but I have some definite left hand weakness and loss of dexterity. When I try and use it, it gets so sore. Same with my neck. Sore. The left hand and mouth/neck/tongue are the sites of all day fasciculations. I was just wondering if you take OTC...

I finally got a copy of my neuro report and she noted weakness, 3+ reflexes but negative babinski. Faciculations also noted. I also had right leg denervation. I am so confused. Isn't this enough 'abnomal'?

I have to get a couple more tests done and paperwork in order, but I am going to make an appt. there next month, if they will take me that soon. Is there a particular doctor you like? Thank you.

Do yours jump around? Do they happen in one specific spot for days, then stop? Do you feel them in your stomach, bum, face, head, basically everywhere? Have they felt more like a pulse, very quick, and only once? How long from faciculations to weakness? Or did they happen simultaneously?

The more I research I see more people who get normal EMGs or only show one thing and then it becomes a waiting game to see what progresses. I guess this is where I am. Limbo land and it sucks. Meanwhile my swallowing is bad, I'm full of fasiculations, my energy is terrible, voice is weaker...