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peg tube and breathing I had a peg tube inserted when I got down to 90lbs (my weight 3 months before was 120). The operation was 4 weeks ago and I am still weak and my breathing has gotten worse ( I can only walk a short distance before I need to rest.) Also, my speach has gotten worse. Now I...

Hi everyone, I am fighting als. I seem to have the bulbuar type. My breathing is down to 1/3 and my hands and arms are very weak. I lost a lot of weight and now I have a food tube. I still can eat soft food and thick drinks. Questions: 1. Does anyone know of a sleep aid that is effective and...

I too, am having a terrible time sleeping with the bipap. I have a model with thin straps that go around my head and the nose plugs are held up by the tube that comes up from the machine. There is a chin strap that I find uncomfortable but, without it my mouth drops open. I see some of you are...

I just found this site today and would like to tell my story. I was first diagnosed with MG in Sept. of 2006. My symtoms started like arthritis in my hands in 2005 then in May of 2006 my speech became slurred and I became short of breath while talking and my left arm and hand became weak. I...